I'm sorry you're dealing with this. I had understood from both my rheumy and my opthamologist that plaquenil toxicity is extremely rare, and usually only occurs after many many years of taking the drug (15+). Definitely follow-up on it, but are they sure it's the plaquenil and not some other disease process? I only ask because when I first went to an opthamologist for plaquenil monitoring, I was identified as a glaucoma suspect because I have a very abnormal optic nerve in my right eye. Visual field tests (in addition to optic nerve imaging) are also used to monitor glaucoma, and it will also decrease your visual field, as plaquenil can. I'm no longer taking the plaquenil, but opthamologist is insistent on following me for possible glaucoma. Hence, I still get a visual field test and optic nerve imaging study done every year. Glaucoma is related to AI disease (usually the low-tension glaucoma) due to raynaud's, which can cause a vasospasm around the optic nerve (or something like that). Since I always have normal tension in both eyes, despite optic nerve damage, they believe I could be developing the normal tension glaucoma.
I hope you get your eye situation figured out, and certainly if it's the plaquenil then stop taking it. Is damage from plaquenil reversible once the drug is stopped?
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex