Hello Everyone ! I hope you are all doing well. I am having a rough time in getting a dx and was hoping someone can help.
To make a long story short, I am 39 y/o woman; I am HLA-B27 +, have IBD (eosinophilic gastroenteritis) . about
4 years ago I developed joint pain, stiffness and swelling which has spread thru my feet, ankles, hands, wrists, elbows and shoulders. It keeps spreading thru more and more joints; I have walnut sized lumps on the outside ankle bones, a mass the size of a silver dollar on the top of my hand where the hand bones feed into the wrist. One of my knuckles is twice the size it should be. My GYN and believe it or not, my DENTIST (who saw my hands) say it's RA. Only my PCP gave me Plaquenil. I finally had x-rays which are fine; I am negative for RA factor but Sed is 29 and c-reactive protein is 5.9. My last round of this took 15 pounds off me. I am exhausted, in pain and take up to 20 Advil a day to function; even that does not help the pain that much. I now have trouble walking, even squeezing the ketchup bottle hurts!
Here's the problem - my old rheumy waited several years before finally kind of saying it was RA. He did not think Plaquenil was helping so he took me off it. He left and now new rheumy says I am fine and wants to give me me meds for fibromyalgia! HUH????
I think they are afraid to diagnose because I have multiple disorders. Has anyone else been thru this?
Thanks so much for taking time to help!