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New Member

Date Joined Nov 2008
Total Posts : 18
   Posted 11/14/2008 5:30 PM (GMT -7)   
My daughter (15) has just been diagnosed with crohns and si arthritis.  Is this arthritis the same as AS

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 11/14/2008 5:45 PM (GMT -7)   
Usually someone that develops sacroiliitis and has Crohn's is said to have spondyloarthropathy associated with inflammatory bowel disease. It really the same thing as ankylosing spondylitis but many rheumys do make the differentiation between the two.

When the doctor said your daughter had SI arthritis did he say she had inflamed SI joints? Did she have an xray or MRI or did he just diagnosis it based on physical exam?
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

New Member

Date Joined Nov 2008
Total Posts : 18
   Posted 11/14/2008 6:16 PM (GMT -7)   
Thanks for replying. She had an MRI. She has been having back pain for around two years. When it first started we had an x ray-which showed nothing, then we had a full body scan which also showed no abnormalities. She went to a physical therapist for about 3 months and that helped a little. Then came the stomach problems!!! Once she was diagnosed with crohns and we talked to the doctor about her back problems (I never put the two together) he ordered some kind of blood test called HBL 27 (or something like that). That came back negative so he said she did not have arthritis. The pain never went away so I asked a friend of mine (who is a physician) to order an MRI. The radiology report said she had inflamation in her SI joints and called it arthritis. I had read a few things about AS and I stopped because it scared me. She also complains constantly about her joints (knees mainly) hurting and popping. We just started seeing a pediatric rheumy and GI that are in the same practice. Problem is they switched her meds to a sulfa drug---she had a horrible reaction---which threw her into a crohns flare that she cant kick. She is now on soooo many drugs!!!! And still feels like a dog! Way to much for any 15 year old!!! I guess knowledge is power and this website has been a godsend for me. Thank you so much!

Pamela Neckpain
Veteran Member

Date Joined May 2008
Total Posts : 1821
   Posted 12/27/2008 11:14 AM (GMT -7)   
I hope your daughter feels better now. I agree that we are very lucky to have
this area of the computer to talk about ... whatever.

I have so many problems written on my many medical records - one of them
is Ankylosing Spondylitis. I have no idea what that is. I do have IBS (D) which
is in remission right now. Do you have any ideas?

Pamela Neckpain
I'm usually on the Chronic Pain Forum.

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.

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