new to this site,,, my hands and knees hurt alot. HELP

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Regular Member

Date Joined May 2008
Total Posts : 159
   Posted 12/22/2008 8:34 AM (GMT -7)   
my hands hurt to bad...................all the time.. not as much numbing as swallen and hot feeling.  and my knees hurt. i have never had any blood work or anything for arthritis but i am starting to wonder what i might have it is so painful.  what would i have to have the doctor do to know if this is arthritis.

Veteran Member

Date Joined Nov 2006
Total Posts : 1331
   Posted 12/22/2008 8:53 AM (GMT -7)   

Hi there,

If I were you, I would make an appointment with a rheumatologist, and at that point you will have some lab work done and an evaluation of your joint pain/symptoms.  How long have you had your joint pain? I'm sorry to hear you are in so much pain, but it sounds like you need to get it checked out as soon as possible.

Regular Member

Date Joined Sep 2008
Total Posts : 285
   Posted 12/22/2008 12:26 PM (GMT -7)   
I am sorry to hear that you are in soo much pain. But I do agree you should go to the doctors as soon as possible.  They will want to know where your pain is, if its in both hands, both knees, the intensity of the pain.  They will probably do blood work.  As in your blood work they can see inflamation, and other things to help diagnose you.
I am recently new to all of this too.  But I was told by my doctor that it was good that I went in right away rather than later on, as now they have a better chance of helping me.
I hope you get the help you need soon.  Take care.

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 12/22/2008 8:46 PM (GMT -7)   
I would go to my GP and ask for Rhuematoid Factor, CRP (not the high sensitivity one), SED and the lupus panel, CBC with diff and platelets, and CMP.
Those are all blood tests (no I don't think you have lupus but your rhuemy will want the information from that series of tests).
It will probably take weeks to get in to see a rhuemy and it will save you time if those tests have already been done and the results are shared with the rhuemy.
At your first visit with your rhuemy those tests will probably all be repeated and X-rays of your hands and feet are likely-don't bother having your GP do the X-rays they don't usually get them right.

Regular Member

Date Joined Nov 2007
Total Posts : 98
   Posted 12/30/2008 12:03 PM (GMT -7)   

Hi MommyP - I recognize you from the Ostomy site.  I'm new to this forum also, but I've been having soooo much pain in my hands and wrists (and to a lesser extent in my knees and ankles) lately that I thought I'd jump over here to see what I could find out.  I saw your post and thought I would respond.  I can't remember your story, but I had UC and had my colon removed a year ago.  I had the j-pouch surgery and no longer have a bag.  Back before my UC was diagnosed I saw a rheumatologist for what appeared to be RA.  Then, after I was diagnosed with the UC, it was determined that my RA was actually reactive arthritis from the UC - an autoimmune disease.  The pain and stiffness and swelling went away for a while, but I was on prednisone for so long that I'm sure it was controlling it.  Now I've removed the colon and the colitis and the prednisone, and the pain has recently come back with a vengenance!!!  My hands are virtually useless early in the morning until I shower.  After that, they loosen up some, but the pain is still there and I can't function normally.  I have to get help with things like opening bottles and jars - even if they've already been opened before! One day I had trouble turning the key in the ignition to start my car.  I don't know what to do about this.  The pain actually woke me up the other night because it was so bad.  I'm taking something called Mobic, but it doesn't seem to be helping.  I have an appt. with a new rheumatologist on 1/20, but until then......?

Anyway, I wonder if our stories are similar and if anyone here has any thoughts, I would certainly appreciate your input.

Thank you!

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