Started Orencia this week.

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New Member

Date Joined Feb 2009
Total Posts : 1
   Posted 2/20/2009 9:56 AM (GMT -7)   
I am new to this forum. I am 36 years old and have had RA for 4 years and have taken just about everything out there with no luck. All the medications seemed to work at first but then became not so effective not to mention side effects from some of them.....scary
Well my Rheumy started me on Orencia this week and I received my first infusion this past Wed. I did fairly well with the infusion but several hours later I had a slight headache, nothing I couldn't handle. So far I am doing ok .....I will receive another infusion on the 4th of March.
My sister has been on Orencia for about 6 months now and she has had some great results. She says she feels like doing extra things now. She hasn't had any problems with the infusion so far except for headaches.

I will post an update as I get each infusion for those who may be interested in Orencia.

I was reluctant to try Orencia but I am so darn tired of hurting and I want my life back. Before Ra I walked 5 to 6 miles a day and was very active. I managed a garden every summer and did the yard work. I weighed 135 lbs. and was never still in one spot very long. Today 4 years after being diagnosed with RA.....I am at 200lbs. and do nothing! I have no energy, no desire for anything anymore. I have given up on my dreams and goals in life....I feel like I just exist these days.
So.....I am hoping that Orencia will be that magical has been an emotional roller coaster going on and off different drugs just to still be hurting in the end.

Is there anyone else here that is on Orencia? What are your results?


Regular Member

Date Joined Jul 2008
Total Posts : 117
   Posted 2/20/2009 5:48 PM (GMT -7)   
Hi and welcome cherokee
I am having infusions too, but of rituximab and I am very happy with it.
Most of the times there are side effects with these medicines. I was told by a friend in the drug industry that to work there must also be a side effect. It is just a matter of how much it can be tolerated by that particular individual.
Keep reading these posts and you will get lots of encouragement even though not many  have been granted the opportunity to experience Orencia, I do recall positive thoughts about it.
All the best and hang in there.
This seens like this is a turning point for you yeah

Regular Member

Date Joined Jul 2008
Total Posts : 117
   Posted 2/26/2009 3:27 PM (GMT -7)   



Hi Cherokee

When are you having your infusion and how often are you having them?

You will feel so much better, these biologicals are great turn


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