Im a 29yr old female and dx with bilateral sacroiliitis... The pain is constant and unmanageable for me. I have been continously to a chiropractor, physiotherapist who practises acupunture. I have also been to an oesteopath. I have been on anti inflammatries and pain killers for months . I dont sleep for more than an hour at a time, because as soon as I move the pain is enough to wake me. I use heat creams, heat packs, warm baths, ice packs, sleeping with pillows between my knees, I dont sit for long periods, no lifting, minimal bending, I had a week of rest off work, but to not much relief. I bent over and emptied the dishwasher and almost immediately pain returned. I had some relief from the acupuncture as it releases the tense muscles I have in my lower back, buttocks and thighs, but the pain returns or the acupuncture is 'undone' with 24 hours or so... I am the process of trying to get an appointment to have CT guided cortisone injection, which I am not that keen on, (I have heard stories about infertility, its lack of effectiveness, weight gain... INFO ANYONE???) I may have to wait 3 months, but I dont know where to turn. Im too young for this and it is effecting my entire life. Ive become a burden/bother to my family, boyfriend,lost friends because after I struggle through a day at work I cannot manage to socialise without extreme determination and self convincing that i can which is exhausting in itself. I cant manage to spend a few hours walking around a shopping centre or sit down in the movie theatre comfortably. Play with my puppy, do my housework etc etc. I cannot perform my job properly (I manage a liquor store, alot of heavy lifting, moving, bending, kneeling which lead to my sacroiliitis). I seem to be rambling. It is so hard to get anybody to understand the pain Im in 99% of the time, I have very little time without it... I am wondering if anybody out there have found anything to relieve their pain and discomfort? Even the tiniest 'tricks' they use for relief. Or what treatment has worked the best? I really would like to discuss this further and hear other experiences.
My true hope is that I can get back to full living/working/functioning capacity, lose the 20kg I have put on since I have had this (about 6 months), I use to be very fit and my physical job helped with that. I am almost hoping to have children soon, but have been told I would not comfortably be able to carry them, And would have to be on complete bed rest for majority of a pregnancy. And I want to enjoy a pregnancy! I dont want to be a pregnant woman to whom pregnancy is a hinderance. I want to be the fun, lively, fit self I use to be. This has changed me dramatically, I am a completely different person than I was 6 months ago. I have always suffered from depression, since I was a teenager. This is making a lot of progress and work that I had made with my depression come undone.
Im sorry for rattling on, but I have needed to let this all out (I feel better just doing so!)
Thanks Brie, Australia
Thanks for listening/reading... Hope to hear from someone....