G'day everyone I have seen my roomy again on friday just gone and have gotten no further. He said that he sent a letter to my GP asking him to alter my meds and ask for a heap of tests, well the GP did not do these test so he was unable to do anything more until all tests are performed. Now I sit and wait again till the GP gets his finger out of what ever posterior he has it buried in and do something positive for a change, sorry as you can tell I have run out of pain meds and now I have to see a locome as I can not get in to see my Gp for 2-3 weeks because he is busy. Unbelievable!!! The plus side is that maybe this locome might have some brains and help me, I do pray. Well thats enough of the gripping, I feel better now, it is so good to get things off our chests with people who understand about these things. See we are all human after all.
Hi Pamela Neckpain, it is difficult when we have doctors who don't whant to go outside there comfort zones and experiment with other meds and drugs if you are in so much pain and your condition is that bad and you find something that gives you just an ounce of relief like the Methotrexate then why wont he let you try it as I say what do you have to loose. I don't know how old you are as we are not that close and it's not polite to ask but some of these medications have terrible side affects but as you are taking opoids and methadone you are already saying you have balanced the scales already against pain and health. Some of these drugs will cause kindey disease or are carsinagenicts and may cause death but that may not happen for forty to fifty years from the time you start the medication so they say that that medication is dangerous to use. That is one factor that solved my problem for taking the TNF blockers which Can increase the risk of developing cancer. So some doctors think they are saving us from more hardship and pain in the future without realising that we want to live comfortably now while we still can, when I'm seventy I would not have such a problem to end up in a wheel chair and have some Doc say you have only 5 years to live, But not now. People wander why we get depressed.
It was an Indian Doctor that first diagnosed me with AS, it was amazing out of all the doctors I ever went to this doctor had treated my uncle who I had not seen in 20years for the same thing, 2years before my uncle committed suicide because he could no longer put up with the pain, He was found out too late and it was very advanced. He suffered severe depression because doctors were treating him for mental problems because they thought it was all in his head.
Enough doom and gloom from me. Just having a bad day needed to tell someone, catch ya's later.
Ankylosing Spondylitis, Hypertension, type2 Diabeties, mild epilepsy
My medications are Salazopyrin 3000mg, plaquinal 100mg, morphine 40mg twice daily,coversyl 10mg, diaformin sr 3000mg, actrapid injection sliding scale + 6 units in morning, lantos solostar 16 units,epilum 400mg, omeprazol 20mg, amlodipine 5mg and panadien forte and tremadol 50mg when needed.