Advice needed please:(

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New Member

Date Joined Oct 2009
Total Posts : 2
   Posted 10/19/2009 3:43 PM (GMT -7)   

My name is Alexandra and I am 34years old living in Arizona.
I was born and raised in Germany and moved to the US in 2001.
I have been having health problems since last summer (July). After my gallbladder was removed in November 2008 I thought all would get better, but it turned to the worse in February of this year.

Here is a list of symptoms I have been experiancing. I do not have any health insurance at this point and am trying to research as much as I can online. Please let me know if you know what this could possibly be :

November 2008 gallbladder was removed during/after a visit to the ER.

Im Februar 2009 – severe pain in my chest. Left side. Numbness in arms, hands, fingers. Severe headaches. Pain radiating from chest to my jaw through my left arm. Diagnosed with Costochondritis. Trouble breathing, coughing, severe tiredness.

After that the pain started to radiate and travel through the entire body. Most Bones- cartilages are/were hurting.

-Joint pain
-Pain in my bones (chest, ribs, hip, knees, ankles, toes, arms, hands, fingers, back, neck, skull (eye sockets), jaw etc.)
-Always tired
-Head aches (ca. 1-2 per week in the beginning)
-Trouble breathing (ca. 1 a week)
-Bruises, rashes,
-red broken blood vessels under the skin without hurting myself. Mostly in face (cheeks/ nose/ eyes) upper arms & chest
-Severe skin rashes after touching my sal***er equipment, tank, sal***er or jewelry.
-Fever blisters/ sores on my lips
-open sores inside the roof of my mouth
-Stomach pains and nausea (2-3mal per week)
- nausea and random mix of dihorrhea/constipation
- Fatigue and exhaustion
- Heart palpitations (sometimes can feel heart beating in chest when I sit or lay on a couch)
- Dizziness (1 time a week)
- Ringing or "buzz" in ears (1 time a week)
- Unexplained intestinal bleeding (for 1-2 days; not currently)

Arthritis and joint pain is the most common and constant symptom. This will occur in conjunction with other listed symptoms.
Some days I cannot walk, stand or sit for too long. The pain does subside with rest but does not go away.
This is really getting to me at this point. I used to be quite active and now I feel as if I am 100 years old some days. Some days are so bad that I cannot even open a can of food (use a can opener) for my children because my wrist joints hurt so much.

Arthritis Medicine und Anti Inflammatory do not help much. Ibuprofen etc.
Albuterol helps a bit with troubled breathing. Vicodin for pain. I take 1 Vicodin once or twice a week when going to the grocery store or any place that I need to walk or stand or sit longer than 20minutes.

September 28th 2009 – I had a seizure at 1am in bed. My first one. This was very scary.


A scaly rash appeared over my right eye Oct 12-13-14; Left eye swollen & red Oct 15-16-17-18 pain inside/around eye socket- trouble seeing out of my left eye. 

Please let me know all of your thoughts. Any advice would be greatly appreciated.

Thank you. Alex


peggy baggins
Regular Member

Date Joined Jul 2009
Total Posts : 153
   Posted 10/19/2009 9:24 PM (GMT -7)   

Hi, Im only a fairly new member on this site therefore I can't really help with letting you know what I think it is, that's something that I think will take quite an investigation! BUT what I can help you with is support, listening and just being here for you when it gets really tough. This site is amazing and the people that use it are so knowledgeable, kind and caring and just putting the odd post up has helped me so much just knowing like minded people are listening and giving support or advice where they think it's important and relevant.

My heart goes out to you not only for having no insurance but for the problems in your health that your having.. sad you must feel so poorly? I hope someone points you in the right direction at least, and I'm hopefully and almost sure someone on here will offer advice or have some comments, so hang in there even if it takes a few days to get a responds or two.

My thoughts are with you and wish you a pain free and good day tomorrow, :-)


Regular Member

Date Joined Sep 2009
Total Posts : 44
   Posted 10/21/2009 2:59 PM (GMT -7)   
Islgirl I am so sorry for you I understand how bad you feel I suffer from Lupus RA Sjogrens,and newly diagnosed with Fibro. THis site is awesome everyone here always has wonderful advice and tons of support at times more than docs or familiy :) It is so good that you are researching things on your own,have you ever gone to a clinic in your area that is based on income and may possibly make payment arrangements,I have often heard of free clinics also you might check in your area for those,where are you located in Arizonia? Sounds like you really need to be seen so you can get on the right medications and make sure with whatever problems you might have don't progress into something terminal. Please honey find a way to be seen soon. I will pray for you and your family. I have some resources on my computer if you want to email me I can send you some information on drs that are possibly in your area. Please take care.
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 10/21/2009 3:03 PM (GMT -7)   

Welcome to HW Alex :-)

WOW you have a lot going on there!

Sorry to hear you are suffering so much.

Do you see a Rheumy for any of your bone complaints?

Have you tried all the meds available for RA?

You also sound like you have gut issues - have you seen a Gastroenterologist about these symptoms?

Sometimes when you have one auto-immune disease you are susceptible to others.

If I were you I would insist on seeing both a Rheumy and Gastro with your list of symptoms and how you have tried to alleviate them and insist on tests to determine exactly what it is that is causing all of this. Then you can head down the right track with the appropriate medication.

Good luck and keep us posted.


Crohn's Disease
Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone
Bowel Resection Sept. 07

New Member

Date Joined Sep 2008
Total Posts : 14
   Posted 10/21/2009 8:02 PM (GMT -7)   
Alex, Do you qualify for government assistance through your state such as Medicaid or through the federal government which is Medicare? Have you checked these resources? Please check. The state funds are there but usually based on income. Most hospitals have a Patient Advocate to assist people with things like this. Call them and see if they can help. Tell them your situation. Get the phone book and call you county for help ask for more numbers of agencies that might help. You must be seen by a doctor soon. You have too many symptoms to ignore. I have epilepsy and have had rheumatoid arthritis in the past. I have also have asthma so I understand breathing problems too. But what you describe is much more than that. I know seizures are very scary so you should not be driving if they are not under control. I crashed a car once before on meds, very frightening to wake up in the back of an ambulance. I will pray for you now and I hope things get better and you get some good treatment.


Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 10/21/2009 8:43 PM (GMT -7)   
Sorry I can't help specifically either, but it does sound as if you have some sort of auto immune thing going on. You really do need to see a rheumy if at all possible. You need all the tests done for all the auto immune diseases. Some need to be treated early to stop permanent damage happening to your joints or organs. Please keep us posted how you are going.
Best wishes, golitho

sf liv
New Member

Date Joined Dec 2009
Total Posts : 10
   Posted 1/15/2010 12:46 AM (GMT -7)   
I hope that you find some help soon. This must be very scary for you. I wish you all the best luck in finding a doctor and finding some answers. Keep us posted.
Happy Holidays.... hoping for a good New Year!

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 1/16/2010 3:37 PM (GMT -7)   
I'm no expert, but my guess would be lupus.

Have you thought of popping over to the lupus forum and talking to the people there and seeing what they think?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

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