Hi everyone, saw my GP as I said, she couldnt help much, she said she didnt understand why the mtx wasnt working, and that the consultant should look at meds again. I asked her for some pred to help, but she said she couldnt prescribe it without the say so of the consultant, as if anything went wrong she would be struck off.
I made a private appt on 29th January, the consultant was amazing, he listened and said he didnt understand why my RA wasnt being treated more aggressively, as if its left more damage will be done.
I managed to get an earlier appt at the clinic, and took the report with me, the consultant seemed surprised, but I told him I need to work, and at the moment its becoming impossible due to pain and swelling. After examining me he agreed to give me plaquenil, butg not to start for 2 weeks, as i have to get eyes checked and bloods done. Also some pred, 30mg to start for one week, going down to 20mg for 2 days etc, while it was at the high rate it was doing a wonderful job, I was able to get upstairs normally, which I hadnt done for over a year. I am just starting on the 5mg regular dose, but by the time I got to 15mg I could feel the difference, pain was back and stiffness and swelling. Tried calling the rheumy clinic nurses, no reply so far. Would it be usual to cut back so quickly on pred? I thought it had to be done slowly, and 15mg to 5mg seems a big jump. I know the pred is a temporary thing, and wont be a permanant one, but even so I was hoping for longer than a week!! Any ideas? Still no results on the tests for lupus/mctd but have abnormal platelets, and haemotology have to get back to me with that. So, meantime, back working with the babies, but feeling a bit down again due to pain. Thanks for reading this
dx- RA Sjogrens, Raynaud's carpal tunnel and overlap syndrome lupus/MCTD