New Member - AS

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New Member

Date Joined Mar 2010
Total Posts : 6
   Posted 3/16/2010 5:51 PM (GMT -7)   
I just joined after a recommendation from my Chiro.  It is wonderful to see the support here.  I don't have anyone here at home who knows what this is like and I know he's grown numb to the whining. smilewinkgrin
I was diagnosed with Ankylosing Spondylitis about six or seven years ago.  I have run the range of meds and used about every option.  I like the Enbrel as I can actually get up in the morning and start moving.  Within the last six months it has moved into my middle-back area and makes use of my arms difficult at this point.  I have been VERY lucky and am fairly mobile and only use a cane during bad spells (about a month this year). 
Here's my question - are there any AS sufferers out there who have had it affect their neck?  That is my biggest fear.  I am able to limit movement/change activities if there is a flair in a back joint, but we all know how difficult that is in the neck!  In the past year I have realized just how disabled I am becoming and kind of want to know what is coming down the road (potentially).

Living with: Ankylosing Spondylitis
Getting help from: Enbrel, Indomethacin, Toprol, Teveten
Hoping for: As many sunny days as cloud ones.

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 3/17/2010 1:52 AM (GMT -7)   

Hi n2slugs welcome to HW and the RA forumsmilewinkgrin

I have AS also and it does affect my neck, although it doesnt hurt as bad as when it flares in my hips and lower back. The neck pain is almost like my neck cant hold up my head (hope that makes sense:-) ) I never want it to get as bad as it does elsewhere as, like you, I am scared of what that will be like. So at the moment the pain is tolerable and I guess that its my meds making it that way. I have had occasions where I have been unable to turn a certain way where my head will seem to snap back to a more comfortable position, but I think that is when I have overdone doing something (again I hope that makes sense lol).

Keep posting to let us know how you are going.

Take care



Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
Forum Moderator - Rheumatoid Arthritis

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 3/17/2010 4:57 PM (GMT -7)   
Fortunately I have not had problems with my neck. I main issues are my SI joints, hips, and shoulders. So many of my tendons are calcified at the insertion points that my tendons are severely compromised. According to my rheumy many of them look like Swiss cheese. I have to be careful because sudden exertion can cause them to rupture. It seems I recall reading that men are more prone to cervical spine fusion. I do try to do exercises to strengthen the muscles that support the areas where I am prone to inflammation. If I fuse, I want to be as straight as possible.
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

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