wearyRAsufferer, My wife has extreme RA. When diagnosed three years ago she was so bad she could not dress herself and her arms were like pulled up raptor style. She began Embrel (I think) at first. She also had a real hard time with the injections. I was right there with her for every injection. I provided moral support mostly. One time it hurt so badly her arm lifted the needle and the medicine just sprayed on her leg. We both just teared up and cryed. It WAS working for her. This was a setback. After a year they stopped helping. They switched her to Humara (I think) and within a few months she was showing signs of sever allergic reaction. We were on the website and went right down the list. She had them all. I told her you have to stop taking this! But here's the weird thing. She went into remission! She stayed that way for almost 2 years! She was taking a little methotrexate (5) and a little steroids, like nothing really. But currently she is in pain and they boosted the metho and steroids. So we are working through it. I have recently been dx'ed with low risk PCa and I think the stress related to this has caused her relapse. :(
In reply to your husbands disinterest. I had a very difficult time with this. I stood by and watched this beautiful woman of only 40 years turn into a contorted miserable thing. I of course gave her all the support I could, but when she talked of the disease I got very sick and uncomfortable. I didn't want to react that way, but it happened. I have a very low tolerance for biological and medical things like this. Not proud of it at all. But I eventually got the jest of it and continue to be very supportive. Even when the doc ups her steroids and she behaves all freaking nutso... Life, it's great if you can live through it.
Hope you do well...
48, Caucasian, 5' 8", 200lb, general good health.
PSA: 8-7-09 3.22, 11-13-09 4.25.
Biopsy: 32 cores. 3 cores reveal PCa, 10%, Gleason 3+3=6, T1C.
Current Treatment: Active Surveillance, next appointment Oct. 2010.
Preferred Treatment: I just want someone to harvest my immune cells, genetically engineer them to fight my prostate cancer, and then infuse them back into my body...