I enjoyed reading everyone's post on this topic! It's like we have our own Society here where we understand each others battles. I just joined this week and I have already met such wonderful people here!
I know all to well how you get treated when you tell people you are sick. I'm not able to work any longer, but I had co-workers that doubted me and it was very difficult. But worse than that, my own family doubted me!! I was accused of having an addiction to pain pills. In fact, my family was planning an "Intervention" 6 mos. ago!!! Like the tv show! I watch that show w/ my teen! And the people on there can't even function most of the time! Yes, They need help. Me....No! You gotta be kidding me! I had even been diagnosed with FMS, RLS, Pernicious Anemia, & Facet Joint Syndrome (w/ arthritis @ L4, L5, & S1) and complained that 4, 10mg Lortab a day would only help for a couple of hrs. So that made me an addict. Not only in my immediate family- my own husband was starting to question me (and his parents did also.) At one point he even thought that I was complaining too much and was looking for attention!! Who in their right mind would need attention so badly that they would fake an illness for months on end in order to get it? And further more what does that say about my character? Did he really think that I was in need of negative attention at 34 yrs. old?- like a child "milking" a stubbed toe?! We were still newly weds when I became ill. Maybe he thought he had a real "Psycho" on his hands?! (Like the movie Heartbreak Kid, where Ben Stiller marries that crazy chic.) He was probably thinking what did I get myself into? This woman has some issues....needing this type of attention! Lol. We had dated almost 3 yrs. before we got married, so I would hope that he knew me pretty well by then. (I do have his support now with the recent RA diagnoses.)-Thank God!
I felt like I had no support at the time. I was being passed around from doctor to doctor. And one doctor even cut me off, accusing me of "Doctor shopping!" - Because I was insisting on running more test. He wanted to give me pain pills and just go away! Matter of fact, he told me that my CT Scan was normal when indeed I had Facet Joint Syndrome and pinched nerves!
To make matters worse, my co-workers didn't believe me either. I had nowhere to turn! There was an older woman in particular who was nice to my face but I walked up one day and overheard her telling another lady that there was no way that it hurt my arm when she would smack me. (One of those people who like to tell you a story and keep hitting you in the arm saying: "You know it....or hey how about that...smack...") She's in her seventies and believes that FMS is a "make believe illness." I'd hate to know what all was said about me amongst that group of people! I left the job under terrible circumstances (Read my previous post!) And now I chase my 18 mo. old ALL day!! But I love it! And I need to stay active anyway. Since I have all my diagnoses, I am finally getting the proper pain mgmt.!! (It's no wonder the Lortab didn't touch my pain after a couple of hrs.!!)
I have had a year long battle with trying to get diagnosed. Please read my previous post: This is a long one, but worth reading (Explains my life in a nutshell for the past year!)
Chronic Pain, RA, FMS, RLS, Scurvy (Vitamin C Defiency), Pernicious Anemia, Facet Joint Syndrome (with arthritis), Pinched nerves at L4, L5, S1, PTSD, Anxiety Disorder, Sleeping Disorder, & Depression