Hi to everyone, I am new here, newly diagnosed after suffering for about six years. I also have Crohn's disease, so the doctors thought I had Crohn's related arthritis, but turns out they were wrong. I've been reading lots of posts here and it seems very welcoming and informative, I have a question about Actemra. I have failed Humira and Simponi when tried for my Crohn's disease, now they started Actemra at a small dose because there is a small risk of bowel perforation and they are keeping a close eye on this.... anyway, I am two days post infusion and the fatigue is sky high... has anyone else had this infusion yet and can you say what your reaction has been? I've been tired from the actual disease of course, but not to this degree. Thanks so much in advance!
Crohn's, Enteropathic Arthritis, Enthesitis, Daily Migraine
Prednisone, 6MP, Entocort, Pentasa, Topamax, Effexor, Vicodin,
Sed rate sits in the 70's and can't seem to get it down