My doctor writes me today and informs me that my CRP is high (10) which shows inflammation in the body. I ask him what my sed rate is because having had this disease for 35 years, thats what i always went by. He says well its at 31 but 30 is normal. So I write back. Telling him first off, 30 may be normal for other people, but for me 15 IS NORMAL and anything OVER 15 is a flare. I have had this "flare" for 2 1/2 years. I stopped seeing my old doc because he told me well you finally have fibromyalgia (sp). Told him he has been a great doc until now and walked out. I was right, i dont have fibro (went to 3 docs for confirmation). So the new doc starts me on remicade and says well we can up your dose and it takes time, dont stress. Well, guess what? Hear I am stressing and annoyed because I have had a flare for soooo long and no one is able to control it! Then I think, maybe I shouldnt get mad at them they are trying. Then they go ahead and say something stupid like "well you look good on paper" (meaning my bloodwork). HELLO!!!! 31 is not GOOD!!! 31 stinks! Now having this for 35 years I realize I will have my ups and downs. But I've been in a down so long, I'm sick of it now and would like to be "somewhat" better! Is that just too much to ask for? And then to tell me its Normal. It's not, and I'm really mad! Ok i've vented and feel better...I think. To anyone reading this, your in my prayers, GB!
Juvenille Rheumatoid Arthritis - diagnosed at age 2 am now 37
Currently on - Remicade, Methotrexate, Prednisone
"God gave you this because He knows you can handle it, dont stop fighting!" - Grammy
"God brought you to it, He will see you through it"