Hi MELttdown, that's a good question. When first diagnosed (4 yrs) ago, I did not tell anyone but my Mother and Sister and asked that they not tell anyone, of course my Mother complied but somehow I guess my sister did not pay attention, she also told her daughter.
So now when we are with anyone she somehow manages to get around to telling that person or persons that I have Arthritis and RA. I would rather not anyone know. I also told two of my best friends and they have not told anyone to my knowledge.
My doctor did not put Lupus down on my records for insurance purposes, only Inflammatory Arthritis and RA. Sometimes I feel like I need extra care too.
I just started a new part time job a month ago (on my feet alot). It has been very difficult for me. Especially since no one at work knows. A lot of us do look normal and act normal and appear totally well. It's hard to decide when to tell and not to tell.