Thanks for your post mel,
Tomorrow, I'm going armed with PDFs from the British Pain Society, treatment guides, drug studies, lists of side effects, pain logs, and with the fact that another Rheumatologist believes I have it. I'm going to tell the doctor I want him to perform the point test to satisfy himself, and tell him i'd like Lyrica, and then whatever opioid therapy he thinks most appropriate (I.e. OxyContin, Fentanyl - or just Oxycodone for breakthrough pain.
If he doesn't agree, I'll probably cry and begin to self-medicate. Lyrica isn't controlled so it is perfectly legal (yet expensive, Looking at $100 USD per month, imported). As for pain relief........ I don't know what I do (and if I did, I probably couldn't say without breaking forum rules!)
A short term course of diazepam would do wonders for me at the moment, Mel. I'm probably going to let my GP run his million-and-one blood tests on me, just because it probably won't hurt to have a different lab check me for once, and then I'll tell him I'm no longer interested in receiving treatment from him.
....Watch this space in 24 hours.....
Mel, regarding your L plates - you're doing the right thing learning as much as you can. When I was first diagnosed, I was seen by a Professor Paul Emery www.leeds.ac.uk/CAREIV/Biosketches/Paul Emery.htm
, a pretty eminent Rheumy (I'm told). He said to me that the best way to fight this disease is knowledge, and that I should learn all that I can about
it, and its treatments. Incidentally, he was the only Rheumatologist I've seen (out of 7, or so) who genuinely seemed to understand how it feels, and made a good attempt at explaining it - i.e. he was acutely aware of the lethargy and malaise caused "I know, it makes you feel like s**t, doesn't it?", unlike others, who are happy to ignore you providing you're not swollen to twice your size.