Hi everyone, I have been dx'ed with fibro for about
3 years and RA for about
1 year. I also have hypothyroidism, high blood pressure, Sjogren's and Raynaud's. My blood tests for RA have always been negative, my rheumy dx'ed me based on the duration and severity of my symptoms. I have had major pain in my finger joints and thumb joints, last winter it was affecting me so much that I could barely do anything like zip up a coat or turn a doorknob and if I did things like cut up vegetables for dinner I was in agony the rest of the night. I also had pain in my elbows and knees occasionally.
I take Lyrica for the fibro, and it helps. I tried Cymbalta for a while, but it ended up making me agitated. I have been on Plaquenil for about a year now, and it seemed to help for a while. several months ago, I started going through a cycle of having a flare right before & during my period. It happened for a couple months is a row, and then it stopped happening.
This past month, I had a really bad flare, you guessed it, right before & during my period. I am resistant to NSAIDS, I have tried several prescriptions and they either give me horrible side effects, or they work for a week and then stop. I have also tried Ultram, which worked beautifully for a couple weeks and then stopped. So I have prednisone for flare-ups, and that didn't help either. My rheumy prescribed Tylenol with codeine, which I had an allergic reaction to (itchy rashy face). Then she prescribed hydrocodone and said that sometimes people aren't allergic to that. So I have been taking that. It helps for a short while with the pain, but mostly it just makes me feel out of it.
So here's my question- what do I do next? I am not in a pain flare all over my body, but my fingers still hurt a lot. It's mostly my index and middle fingers, and I have gotten comfortable clicking a mouse with my middle finger because my right index finger hurts worst of all. I just learned to knit, and I can't do that. Now even doing things like grasping dishes to put them away makes me hurt. I'm wondering if my finger joints are deteriorating and that is causing the pain. I had blood tests recently and they "were all negative" according to the drs office.
With a condition like RA in the fingers, what can you do? Is it just a matter of finding a medicine that will take away the pain and then living with it? I have already had to stop doing a lot of what I love because of the fibro and RA, how can I live with this pain? Am I supposed to just sit around the house all day? I can't do a lot of cooking, which I enjoy, unless my hubby is home, and then he cuts everything up ofr me or peels potatoes or whatever (I call him my Sous Chef!) Should I ask my doc if I should get x-rays to see if there is any joint damage? Then what do we do?
Oh another thing I have noticed is a white bumpy thing under my skin on the middle knuckle of my index finger, right hand. Don't know if that's related to the pain. I know there are things like Heberden's nodes but I don't know if that is it.
Anyway, sorry to go on for so long, I just want to explain my situation. I want to see if we can figure out what's causing the pain and fix it instead of just covering over the pain with medication! Thanks for reading!