So I had my rheumy appointment yesterday, and about
a month ago I had called into the nurse in a horrible flare. I had asked for a script
of pred and got it. I have a varied work schedule and for the last few months have been working nights from 10 pm until 7am and normally either get a few hours of sleep until I pick up my daughter or if I don't have to work that night, I get to finally sleep at the normal bedtime of 9 or 10, often being up past 24 hours. Yesterday, I had worked the night before and when my appointment rolled around in the afternoon had still not been to bed.
My rheumy found this out, and was not happy! I was lectured that I could not use the pred to *get by* since this is the only thing that really keeps the joint pain and fatigue at bay while I'm working, and I only have one refill left. The lack of sleep was most likely the cause of my increased joint pain and high blood pressure of all things!
My rheumy told me that he would advise working an overnight once a month!!! What?! He stated that he is very concerned about how my job is affecting my arthritis, and yes it has been difficult, but it was the only job I could find, and working with the homeless population has been so rewarding, I hate to give it up:( This has been the first job I have had since my diagnosis of RA, and don't want to give it up!
I only take the pred on the nights I work, and I still have not refilled my other script, yet he still was not happy. I know it is dangerous, but it is the *only* med that truly works, pain pills are for the birds, and I can't take those and work. Yet he is more than happy to fill that script anytime I ask!
So sorry, this post started out with a purpose, now it looks like it turned into more of a rant about my rheumy, and the fact that my RA won't cooperate with my schedule! It is just so terribly frustrating! I really really hate RA!!