I've had sacroiliitis (inflammation of SI joints) for about 15 years, with it getting worse and worse. Recently I've had an MRI, xrays and blood work done, all showing fine results. So no fusion, deterioratino of cartlidge and even nothing showing in my blood. However, a bone scan done years ago showed inflammation of my SI joints plus my symptoms are typical of sacroiliitis. Someone on here also mentioned perhaps I have pirformis syndrome, which when I read it, makes total sense to describe the shooting pain.
On "good" days, I suffer from back pain...esp when sitting or if i carry something for long periods of time. It can process to actual joint pain where the bone feels like it hurts or aches. As warnings of a flare up, I get little pinches. And in full flare up mode, I get shooting pain from my joint/bottom down my leg, where I can't even put weight on the affected side or even move, for that matter.
i recently tried cortisone shot (both sides). it seems to work, but was short lived. My rheumatologist says that exercise is good, but everytime I try, I am that much sorer the next few days. And that's the good case. It also often triggers a flare up with shooting pain (like last week).
I take celebrex, but can only take 1 max daily and have to be careful as I had ulcerative colitis (colon since removed).
So the only thing left to try is physical therapy. I've been hesitating as:
1) I tried it years ago and it did nothing
2) It's physically time consuming...and I dont have much personal time as I'm a mom of 2 kids...of which I work during the day and pick them up right after school
3) It's expensive
4) I'm scared of aggrevating the issue more and causing a flare up.
Any advice from others? And has physical theraphy worked for others in my situation? Do you tell them anything specific? has it ever made your situation worse?
any advice is much appreciated
PS - This is the first website where I've found others who seem to be int he same situation with sacroiliiitis and UC or chrons