Hi there, I'm new here and hope someone can help me out.
I've been taking Remicade for RA and PA for 20 months now. We went with this over Humeria and Enbrel because of the psorisis and a problem diagnosed as microscopic colitis. Basically, the doctor said, colitis symptoms caused by the arthritis.
I have not been taking methotrexate or any other drug with the Remicade until recently when I started Lodine. It made me feel awful and I stopped after 3 weeks of 1/2 dose (due to liver issues I was diagnosed with in December.)
The last 2 times I had the infusion, I got very itchy within 30 minutes of starting the drug. This last time, it was worse and my eye swelled up and got covered in film and hurt like heck. I recalled last time this happened - only more minor. The eye issue happened soon after my infusion ended rather than near the beginning. The nurse insisted that I was on too low of a dose still for the reaction to be the Remicade.
3 days later, my joints hurt so bad that I wanted to jump off a bridge (or fall off since I couldn't possibly jump!) I was utterly useless and couldn't move. I'm better than I was, but I definitely hurt everywhere and it is tough to do much of anything - a far cry from my usual "I FEEL GREAT" after my infusion. I stopped the Lodine about 5 days after the last infusion as I felt terrible on it. I was supposed to start Plaquinil since I won't take methotrexate...but, I am afraid to start it. I already have hair loss, liver problems, and now immune issues as I can't stay healthy for more than a couple of days. I found a warning also that said, "do not take this medication if you have psorisis" - which I do, though it is (luckily) minor by comparison. At this point, I have a hard time believing Plaquinil will help me anyway.
Is this an allergic reaction? Has anyone stopped using Remicade if this is the road I need to take? From what I understand, stopping it will bring back the arthritis 10-fold. But, for how long does this usually last? Will it and can it go away back to one's normal pain level? Or will it ruin the joints so bad you'll be worse off either way? Is it definitely going to happen or possibly not? The fact I hurt so bad right now, only 9 days after my infusion, really scares me. I have 2 small children and feel like a rotten parent as it is since I'm unable to do so much with them. I've been dealing with nothing but health issues since my 2nd was born 4 years ago and Remicade has been such a wonder drug up until now. Does anyone have PA and use Remicade with Plaquinil? Do you have any suggestions or insight?
By the way, I opted NOT to call my doctor for 2 reasons, 1 - I see him next week and figured I would have to wait anyway. 2 - No matter how coincidental the situation, he insists people do NOT have allergic reactions to drugs except on very rare occasions.