Histoplasmosis

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Dancy
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/1/2011 7:18 PM (GMT -7)   
I was diagnosed with Histoplasmosis in 2009. A horrible illness. It went right straight to my lungs. I have RA now for well over 40 years and have been on Enbrel (a biological) since it came on the market in the 90's.

Has anyone else had this illness?? I would like to talk to someone else who has gone through this. I am now on oxygen 24/7 and I blame that primarily on the Histo.

Dancy

BadDay
Forum Moderator


Date Joined Jan 2011
Total Posts : 1046
   Posted 11/2/2011 12:41 AM (GMT -7)   
Hi Dancy
 Hope your feeling Bit Brighter, i was confused did you say you had the Histoplasmosis Before the Enbrel or after?
i'm just doing my own little info collection on the Biologic's.
Hope someone how has simular issues contacts you
Thanks
 
 
Rhumatoid Arthritis 20Yrs.(that is Diagnosed-but had symptoms since teenage) Asthma,Osteoperosis,Cervical Spondalosos,Degenerative Disc Disese,Diabetes,Heart svt Diabetes
Metheltrexate,Tramal 200mg(twice Day),Prednisone,Diabex.
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* We are Born Crying We Die Crying Try to Laugh inbetween, None of us are Getting out of here Alive *

Dancy
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/2/2011 3:46 PM (GMT -7)   
The Histoplasmosis hit me many many years after taking Enbrel. I started Enbrel in 1990 and contracted Histo in 2009. So that is a lot of years in between. I talked to my Lung specialist today and we both think that I contracted the Histo due to extreme stress for the past several years along with my overall decline in health.

I realize anyone on biologics are susceptible to this fungal disease but I have always wondered why it waited so late in my case to pop up!

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2474
   Posted 11/4/2011 10:03 AM (GMT -7)   
I think that's the problem- you can be going along fine on the biologics then all the circumstances become right to bam- hit you with one of the risk factors. I didn't realize once you got it it stays with you. I'm surprised they keep you on Enbrel- although I am no medical expert so I really know nbothing.
I do wish you find relief and wish you all the best.

Dancy
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/4/2011 2:10 PM (GMT -7)   
Yes the Histo does stay in your body. The infectious disease specialist put it this way..........everyone is exposed to the Histo fungal spores and some people are slightly infected with it and never seek treatment as their symptoms never get very bad. Then those of us with suppressed immune systems are much more likely to get it with all the symptoms that go along with it. That was my case. Some people die from it. The doctor told me it does stay in your body and I have had the necessary blood tests to make sure it is not active again. Since it has been this long now my lung spec. says it would be very rare for it to become active again. But the damage is done. They took me off all RA meds while I was in the hospital and over a period of a week or so my body went bolistic! Red hot swollen extremely painful joints etc. All this because I was not on the RA meds. So I went back on all my RA meds including Enbrel and Methotrexate plus Prednisone to get myself up and walking again. I was in a wheelchair for about a month before the meds began to kick back in. I was a total mess!!
So yes I am still taking Enbrel. If I want to be functional I have to take it.
It all boils down to my quality of life I guess.

Dancy
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/4/2011 2:11 PM (GMT -7)   
Thank you both for replying to my post. ;)

Dancy

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2474
   Posted 11/4/2011 6:24 PM (GMT -7)   
That sucks- so sorry dancy- I agree RA meds vs wheelchair wins out. Do you live in a state where histo is common?

Dancy
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/5/2011 7:39 AM (GMT -7)   
I live in Central Texas and it is not common in this area. And on top of that I have not traveled away from home. lol I've read it's very prevalent in the Mississippi Delta areas and surrounding States. Some doctors around here never even think of testing RA patients for it. It just so happened I had been seeing an RA commercial on tv that mentioned fungal infections as a side effect of Enbrel etc. So when I was hospitalized because I couldn't breath I told the lung spec. I wanted to be tested for Histo and he said okay we will do that. It's highly possible if I had not mentioned it I would not have been tested for Histo at all.

While in the hospital in 09 I also mentioned to the lung spec. that my Dad and my Grandfather both died of lung disease and I wanted to know if lung disease could run in my family on my Dad's side. So we tested for that too. It's a genetic gene type blood test. It was positive for Alpha-1 Antitripsyn Deficiency. Antitrypsin is a protein secreted by the liver that is necessary to have healthy elasticity of the lungs. So I have had this all my life also and did not know it. This genetic problem is so often missed and not tested for. Many people walking around having been diagnosed with COPD may easily have Antitrypsin deficiency and don't even know it. Basically it's the genetic defect is why I am on oxygen full time but the Histo sure didn't help any.
I'm pretty sure my Dad and Grandfather both may have had Alpha-1 and never knew it. My Dad died in 09 with pneumonia.

bluewriter
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/9/2012 8:50 AM (GMT -7)   
Hi, I need help. My daughter is 8 years old. When she was born they said she had RSV. Then they diagnosed her with bronchitis a couple of times. Then when she turned six she developed constant lung problems. Been to a million(it seems like) doctors who have diagnosed her multiple times with pneumonia, bronchitis, allergies, croup, and histoplasmosis. She's tested negative for asthma four times by different doctors. Two pediatric pulmonologists said they don't think histo is causing her symptoms and her xrays shows very calcified histo. They event took out her tonsils and adnoids. We live in Arkansas and only have medicaid. She's had a very rough life and I love her more than my own life and can't seem to stop these horrible things from happening to her. And here she is with constant cough. Now it's gotten worse and again they diagnosed her with pneumonia. They always give her antibiotics and steroids. I told the doc to do something other than a chest xray. Her chest xrays are always abnormal and they said it could be pneumonia or histo, they look the same. Because of our insurance I guess, they won't run any other tests-not blood or ct scans or anything. Now she had heart attack like pains three times a day and joint pains. I'm so distraught! We have an appt in three weeks with an infectious disease specialists. Any advice would be much appreciated. Thank you for reading.

wishingyouhealth
New Member


Date Joined Jun 2012
Total Posts : 1
   Posted 6/24/2012 10:43 AM (GMT -7)   
My heart goes out to you and your girl.
This is what I would do:
1. look into the possibility of chronic chemical poisoning. The symptoms she is having can be cause by exposure to heavy metals, dioxins or formaldehyde. If formaldehyde, symptoms should recede shortly after exposure stops. Formaldehyde is everywhere, particularly in low-cost furniture, carpeting, and is a metabolite of car fumes, among other things. It's incredibly dangerous.
If there is an ongoing exposure to dioxins, I would do everything in my power to get the kid away from dioxin. The most likely, however, is in her case heavy metal pmoisoning. I've had exactly her symptoms, and then some. It will not get better by itself. I followed the Cutler protocol for heavy metal chelation. I would contact Dr. Andrew Cutler. I would not go to a normal doctor because this is too specific and they can do a lot of damage if you let them. Read the book Amalgam Illness diagnosis and treatment, write the author, you will find his email in the book (Amalgam is not the only source. heavy metals travel from mother to baby and can spread even through air as well as happen during med. procedures).
What I would _not_ do: I would _not_do a CAT scan as it is equal about 256 chest xrays. You can find out about sources of poisoning by testing her hair using Cutler's book on hair. He is the world's foremost expert on chemical poisoning. He could be your answer. Find his website noamalgam and contact him. He saved many lives.
Plus, a CAT scan can't show chemical poisoning, so it would not help if that's the reason. Also, I avoid fluoride, filter water to avoid. God bless you and your baby. I will pray for you.(I'm writing this ona mobile device, please forgive the messy composition)

Post Edited (wishingyouhealth) : 6/24/2012 4:13:28 PM (GMT-6)

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