No, I have not yet begun taking LDN...the doctor I went to still isn't comfortable prescribing this for me, I think because she's afraid it will "clash" with what my rheumatolgist thinks. (I couldn't care less about that!) I have an appointment with my rheumy this week, and I'm going to ask her about it, but I have zero hopes that she will go for it...she's very rigid in her thinking. (Of course, she has no problem prescribing these toxic drugs I've been on for years, and I'm the one taking the chance on LDN, but I'd be flabbergasted if she agreed to prescribe it.)
As I mentioned, I have a plan B, but I have to save up some money. I've come across a list of doctors who will do phone consultations and prescribe LDN if they believe it's warranted.
These doctors willing to do phone consultations are open-minded physicians who've seen how helpful LDN can be to people, and they know it's difficult to find a doctor who knows enough about it to prescribe it. Most don't take insurance, so the money for the consultation has to be paid up front. (I think it's a big hassle to bill an insurance company for a phone consultation, so they just don't do it.)
So, that's where I am now...saving up for a phone consultation. I picked out a physician from the list I found, and I'm going to give them a call tomorrow to make sure they still do this, and if so, I'll be setting up an appointment as soon as I can get the money together.
Again, this drug is not a cure, but it "fools" your immune system into thinking it's normal, and you have to take it every day to keep up this effect.
The thing I'm concerned about is how to go off of the Enbrel and methotrexate. (Since this drug temporarily restores one's immune system to normal, you can't be on immunosuppressive drugs while you're taking it.)
That's where I think having a doctor you can call (for a fee, of course) who's familiar with LDN is better than finding a local doctor to prescribe it who has no experience with the drug. I'll see if that thought holds true!
I am trying not to get my hopes up too much, but it's hard...I'm saying a prayer that this works as well as I've read it does. Wish me luck...I will post here when I begin taking it, and we'll see what happens!
"Life is not about
waiting for the storm to pass; it's about
learning to dance in the rain."
Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease, GAD, migraines, panic attacks, chronic hangnails (just seeing if you're paying attention!) : )
Post Edited (kimliz59) : 4/8/2013 12:03:20 AM (GMT-6)