Finally some relief! (New dr and prednisone burst)

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

islandjacquelin
New Member


Date Joined Mar 2013
Total Posts : 4
   Posted 3/20/2013 10:01 PM (GMT -6)   
Hi,
I posted here a couple of weeks ago. At that time the doc said I had reactive arthritis but didn't do much of anything except prescribe celebrex. It was a humiliating experience as I felt he didn't listen to me at all, and didn't seem interested or concerned about the overwhelming fatigue and weight loss i have been experiencing, as well as the fact that more joints were involved.

Well, I saw my new doc and it has been a totally different story. He listened! And he got that the fatigue and pain and stiffness were so bad I am now working only half time. He is almost 100% sure it is RA, and has referred me to the Rheumatologist on an urgent basis, and I have an appt next week. (The usual wait in Canada where I live is about 4 months)

As the celebrex has done nothing - he started me on a prednisone "burst" 30mg x 2 days, 25 x 2 days, 20 x 2 days, 15 x 2days, 10 X 2 days and 5 x 10 days. I already feel so much better. I know it is just a temporary thing to control symptoms for now, but I am so grateful to have relief from the pain, and happy that I will finally see a rheumatologist to make a plan for the long term.

I am sure there are others who have had similar "bursts" of prednisone - what can you tell me about it?

Thank you for listening and for your wisdom.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 3/20/2013 11:20 PM (GMT -6)   
Hi I am glad you found a good doctor whom listens to you and
that you can finally see a Rheumy doctor whom will help you with your arthritis. Keep us up to date on how it goes with your Rheumy appt.
I was diagnosed with Crohns Disease 1992 . I also was diagnosed with Rheumatoid Arthritis.

Meds: Enbrel: Once a week injection, Vitamin B-12 injection monthly, Vitamin D :Once a week.



FORUM MODERATOR: RHEUMATOID ARTHRITIS

BadDay
Forum Moderator


Date Joined Jan 2011
Total Posts : 1067
   Posted 3/20/2013 11:43 PM (GMT -6)   
Hi glad you are getting things on track amazing how a Good Doctor can help
i have been on Prednisone for some 20years yes 20
i have over that time had Bursts of higher doses
you Will Feel So much Better right away
However Depending on your RA when you start to tapper off you Might Feel Yuck
depending on your Dr he Might Leave you on a Lower Dose if you do feel Yuck
But as it is with RA the Burst Might be all you Need to get over this Hump so as you Taper Down you may well simply slide along Sorry there is No Difinitive answer for you but it Seriously Depends on the Person
This is a Must You Must Have Food with the Prednisone and Drink or you will end up with a bad tummy
even if you take the prednisone with a glass of milk then eat a bit latter but Do Not Take it on Empty stomach repeatedly 
FORUM MODERATOR Rhumatoid Arthritis. RA 30Yrs. Asthma,Fibromyalgia,Osteoperosis,Cervical Spondalosos,Degenerative Disc Disese,Disc Bulges, Diabetes,Heart svt,Hypo thyroidism
on Metheltrexate,Endone,Tramal 200mg,Endone,Prednisone,Metforman(Diabex),Digoxin

* We are Born Crying We Die Crying Try to Laugh inbetween, None of us are Getting out of here alive

psbg
Regular Member


Date Joined May 2012
Total Posts : 280
   Posted 3/21/2013 9:09 AM (GMT -6)   
BadDay,
I am thankful to hear that you have been taking prednisone for so long. I hate to know that you need it but I have been trying to get off of 2.5mg and I just cannot do it. I have the fatigue soooo bad until I have asked my dr. to just let me stay on it. Waiting to hear from him now about that. But he knows that I have tried several times before to come off. Just cannot do it and he always is fine with me stayng on it. Its always my idea to try and come off.... it just worries me to be on it but if you have been on that for 20 years maybe I will be fine too. Thanks for the words of encouragement...
Peggy
Rhuematoid Arthritis, degenerative joints, herniated disc's in back and neck. I take Cimzia injections, Plaquenil, 2.5 prednisone, hydrocodone for pain. And like most of you I fight with fatigue regularly... ughhhh

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 3/21/2013 7:59 PM (GMT -6)   
Hi Jacquelin, prednisone can be so good at getting a flare under control. Lets hope they leave you on a maintenance dose until you start the meds specifically for RA.
They can take a while to kick in. I was put on a low dose 5mg of prednisone for 5 years which really helped me. But now I am finally off it.
I love the fact its there for those rough times.
Best wishes, hope the new rheumy is good and they get you symptoms under control soon, golitho

BadDay
Forum Moderator


Date Joined Jan 2011
Total Posts : 1067
   Posted 3/21/2013 11:05 PM (GMT -6)   
Hi Peggy
um Glad i helped But Now for the Bad News Yes i have been on Prednisone for actually 25yrs and for at least 5 of those years was on a comtinual dose of 40mg then down to 25mg for a few more years then down to 10mg this is where i hover 5-10mg But i Also Now have Osteoporosis, the Round Face and lost my Teeth Yes Most Contributed to Prednisone The Dr said now that i have been on it so long my Body has stopped making its own Cortisone so i can Never Get off it
 So if you can get off it Do So But if you cant just try to keep it Low as Prolonged high doses well you'll be Me wink
FORUM MODERATOR Rhumatoid Arthritis. RA 30Yrs. Asthma,Fibromyalgia,Osteoperosis,Cervical Spondalosos,Degenerative Disc Disese,Disc Bulges, Diabetes,Heart svt,Hypo thyroidism
on Metheltrexate,Endone,Tramal 200mg,Endone,Prednisone,Metforman(Diabex),Digoxin

* We are Born Crying We Die Crying Try to Laugh inbetween, None of us are Getting out of here alive
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 24, 2018 3:38 AM (GMT -6)
There are a total of 2,974,675 posts in 326,198 threads.
View Active Threads


Who's Online
This forum has 161296 registered members. Please welcome our newest member, Graham1234.
239 Guest(s), 1 Registered Member(s) are currently online.  Details
hrpufnstuf