Craig, welcome to the forum. What a tough thing. I too try very hard not to use PA (psoriatic arthritis) as an excuse but sometimes it is the truth. Unfortunately this is a lifetime illness. There are stories of spontaneous remissions out there but most people develope a "chemical remission". In other words you are symptom free because of the meds you are on not because the disease is gone. I tried to convince myself that I was in a remission years ago and tried to go off all my meds, the PA came back even worse then before. It has taken me about
6 years and a change of rhuemy to get to the "chemical remission" that I am in right now.
You are not in denial of the disease that I can read but you seem to hope that it will not run your life. Unfortunately it will. Maybe not at the forefront but in the background it will always be there. Sorry to sound so negative but it is the truth. Don't use the RA as an excuse or crutch but realize that you do have to take it into account in planning your life. So you take meds, who really should care? If you are able to function take it!!!!!!!!!! Meds are great to someone with a chronic illness. If you want to try and switch up meds to something a little less potent talk to your rhuemy about
it. Keep in mind that messing with them can cause a nasty flare and you may not get back to where you are right now. Trust me on this cause I've been there, done that. Some people find that once the swelling is under control they can taper off some of the more potent drugs but I would advise against doing anything without consulting your MD.
You will get stronger by simply acknowledging that you have a debilliting illness and giving yourself permission to grieve over the changes it has meant in your life. It is not easy. It took me many years to accept that this now runs my life not the other way around. I life for the good days and roll with the bad. Right now there are more good then bad but it hasn't been that long since it was the other way around. Hang in there.
As to the drug you mentioned, I've never heard of it. Talk to your MD about
it. They may advise against it but get the reasoning behind it. There are many alternative therapies out there that a lot of our members have tried. Some work and others don't. It depends on your system. Try to find out if it is FDA approved. Trust their website. If they say it has been pulled, you may want to think twice about
using it. Ask around. Hopefully someone comes along who has heard of it that can give you info on it.
Some personal info here, I am 30, married with 2 boys (9 and 7). I was Dx with PA 8 years ago while pregnant with my second. It has taken 8 years but finally have very little pain. I am on plaquinel and Enbrel right now but have tried Arava, mobicox, ketoprofen, and MTX. I was actually about
2 weeks away from trying remicade but the symptoms started getting better so we opted to stay on the enbrel for a while longer. Here I am now. Glad I waited it out.
Sorry for the long note. Sometimes I am quite passionate about
what I write and I start rambling.
Keep in touch. We look forward to getting to know you better.
Worry not for tomorrow, for tomorrow will take care of itself.
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
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