I have been a "poster child for Remicade" for several years. I was on a 7mg/kg of body weight dose every 6 weeks, for several years, and my RA symptoms had just about disappeared. I loved it. My blood work and other tests were all perfect.
Then I started with strange sensations in my finger tips, all 10 fingers. It was/is not so much tingling as a hypersensitivity. I am constantly aware of my fingers. This plus a marked decrease in the strength in my hands. I saw my Rheumatologist on a Friday, he ordered a brain and upper spinal cord MRI for Monday afternoon, and Tuesday morning he called to say I had lesions in my brain. I saw a Neurologist, had an EMG and NVC to test the nerves and muscle activity in my hands and arms, both of which showed abnormal loss of strength and marked weakness. I then had a spinal tap and I am waiting for the results of that to come back.
Both doctors seem positive that I have Multiple Sclerosis, brought on by the Remicade or just developing by itself. The results of the tap are expected to show certain types of proteins that will determine the cause. Either way, I will no longer be given Remicade.
The plan, at the moment, it not to treat the RA with anything other than Methotrexate. There are drugs available that will help both RA and MS, but I'd have to stop the Methotrexate, which I've been on for 10 years or more.
My Rheumatologist, who is wonderful, said, if this if from the Remi, I will be the 3rd patient he has had since he stared using the drug. The Nuro MD is not familiar with this side effect at all.
I had my last infusion 6/27, and I'm feeling OK, but I am extremely fatigued. This could be from MS or RA.
I hope that you get worked up and learn what is causing your problems, dealing with a known is easier than an unknown. If I can help or share any other information, I'd be glad to. I'd love to know what your final result is.
Good luck and God Bless.