Effie, Susie, Erin,
My heart aches when I read your posts about the way your loved ones treat you, regarding your illness. My children do not understand why mom can't do the things she use to do, but they have never made hateful remarks. My husband knows I am in pain, but does not really have a clue why. He is very supportive, but he is always after me to get out and do more, so I will feel better. Wish it were that easy,
Susie, I am glad you decided to take your doctor's advice, because as he said, no one can make your hubby follow doc's orders except himself. And as you said, those of us with a chronic illness have to focus on ourselves, and keep the stress level down, in order to survive.
Erin, I agree with you, it may be a defense mechanism for some,or just denial, not wanting to accept what is happening to loved one.
Effie, I wish there were wonderful words of wisdom we could all give you, that would make your son do an about face, and understand what his mom is going through.Sadly I have none. I do think you are on the right track by keeping yourself in therapy to learn methods to help you cope with him. Words can pierce just like a sword. I pray that he will realize one day just how bad he has hurt you, and become the son you know is inside his body.
My thoughts, hopes and prayers are with you all,
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
and Lord, put your arm around my shoulder and your hand over my mouth