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juvenile arthritis in adults

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Rheumatoid Arthritis
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katjie
New Member
Joined : Mar 2014
Posts : 3
Posted 3/22/2014 2:23 PM (GMT -7)
I met a young man who is 36 years old and lives with Juvenile Arthritis. I know nothing about this illness and would appreciate any info on this topic and how I could help this young man having a good quality life. He is living in an old age home. He is always laying on his back, and only sits in a chair when they take him for a shower. He can't walk at all and he is blind. He always have a fan blowing on him because he is always hot. This young man has touched my life in so many ways. He is always positive and has a great sense of humor. His mind is as sharp as a knife. I wish I can help him, but I don't know how. He doesn't receive any form of therapy because of financial reasons. I know he is on medication, but I don't know the name of them. Thank you for taking the time to read about Martin. Looking forward to read all I can about this illness.
Regards Katjie.
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sueg
Veteran Member
Joined : Aug 2013
Posts : 718
Posted 4/15/2014 4:59 PM (GMT -7)
I think it is great that you care about Martin. He must have been
sick his whole life with RA, how sad that is. I know that having you
for a friend and just spending time with him is the best thing you
can do.

When you think about it, giving your time and attention to
someone is so special. I bet he loves your visits!

And you can read about his illness online or get books about it
from your Public Library.

PS--my grandson is severely disabled and will never walk or talk,
he is 6 yrs. old and wears diapers but loves to be read to and hugged and talked to. He just loves everyone and is a handsome
little boy--I know that he loves my visits as does your friend. God bless you!
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chloe0904
New Member
Joined : May 2014
Posts : 5
Posted 5/23/2014 8:52 AM (GMT -7)
Katjie, my son has had arthritis since he was 10, diagnosed at 12. He is 32. I am really saddened to hear about Martin. I think the biggest thing for my son is knowing he is accepted by peers and younger people with his limitations, which are pretty severe. He is not as bad as martin, but it sounds like Martin may not have gotten any care or support when it started. We have always been as aggressive with treatment as we can to keep Jake as functional as possible for as long as possible.

I think just the fact that he knows you care about him, regardless of his problems, means the world to him. Reading to him, keeping his mind active with crosswords, or any puzzles, where you can do the writing and he can do the thinking, if you can get him out once in awhile.

My son has a very small circle of friends that he has had for a very long time, but he has a big shell. He knows he will always have our support and love, but it is essential to have the support and acceptance of friends. I think you are a wonderful person!
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bab717
New Member
Joined : May 2014
Posts : 2
Posted 5/28/2014 4:50 PM (GMT -7)
I am so sad to hear this story; it is certainly one of the more severe cases I have heard. I was diagnosed with JRA when I was 8, prescribed a heavy dose of advil everyday and hope it goes away. One year later it went into remission for the following 10 years. When it came back it was a slow progression for 4 years but on the 5th year I couldn't even get out of bed, I was 22 years old. Since it came back from remission other medicine had come out and I always tayed on top of it and most importantly stayed active. Moving is so critical with RA for your joints to not disfigure themselves. I eventually went on Enbrel for 7 years and had great luck but the side effects were not worth it to me so for the past year and half I have been using Eastern Medicine by visiting an acupuncturist 1-2x/month and taking Chinese Herbs everyday. I have been in remission now ever since.

Doctors have always considered my case Severe but still in Juvenile state b/c it only affects my large joints and not equal on each side. Like your friend this could be hopeful that it will not develop into mature RA. I hope some of these tips can help your friend.
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Admin
Forum Administrator
Joined : Jan 2003
Posts : 10196
Posted 1/24/2020 12:03 PM (GMT -7)
Chartreaux posted in another thread:

I have a rare form of RA that they think is affecting my eye's as well...However, I do believe I've had Ra since childhood, but never got the dx. to quickly sum it up RA is very unpleasant.

Maybe get him an Barnes and Noble Nook device and down load some audio books for him, he probably could get help from some staff people to get the books to play or you could go to Barnes and Nobles and look for audio books.

I would recommend supplements but I do not know what meds he's on and you'd have to run those by his doctor to see if they could help. Best thing you can do is be his friend and someone to latch onto for friendship. A good friend someone that listens is always good medicine. Maybe ask him if he needs anything. Maybe look into getting him a service animal for help. Since he's blind a service animal might be the best thing to look into for him, just make sure he's not allergic to dog's.

Google Service animals and NOT Therapy dogs...A Service dog has access everywhere a Therapy dog does not.

I'm always cold so that a huge difference right there, maybe ask the old age home if an window air conditioner unit would help, but those are expensive...

Many many well wishes and please keep being his friend...friendship is a lovely gift.

Other's will come by with better advise...Look at the JRA Website, there is a national website...for better help...
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