Posted 8/23/2014 12:26 PM (GMT -6)
Sure can relate, finally diagnosed with the same thing after 6 months of pure agony. Got so ill went upq by my children so I could die by them. Was actually paralized (in side organs) as well and my body. My children had to literally pick me up and carry all over. Was in so much pain I would scream is someone so much a put a finger on me.
Finally flew home to Fla. Thank Doc figured it out and digonised me with the same thing as you. In a week I was much better. LIke you doc , my doc says if will take years and I must stay on prednisone indefinitely. Still have pain to deal with, but am so grateful, lol, never thought I would be happy to mop the floor. Keep the faith