I saw my Rhuematologist a while ago and I finally got some answers. She said I have some form of Spondylitis, and that RA was most likely not my problem. But, she said that there is a small chance that it is Ra. A very small chance.
So, we are going to treat this as (IBD related) spondylitis. I am currently taking Imuran 100mg and I am also on Methadone.
I know some people think "oh my! Methadone!" but it really isn't as hard of a drug as you might think. I take 20mg every 8 hours and it keeps my pain away for the most part. Without it I am a mess and I can barely function, I just hurt all over! Since I cannot take any NSAIDs-- and tylenol does nothing for pain, I am left with the hard drugs. I want to try to get off of them again soon though.
My Rhuemy gave me a few cortisone shots and it made me feel quite a bit better in those areas, so I might be able to cut down on the pain killers and try and live a normal life. How many of you have had cortisone shots? does it work for you, and how long??
I am just wondering about the cortisone because people have told me that it is dangerous and not good to do on a regular basis. I figured if it is what will help me, that is what I am going to use. Those of you with experience on this, could you please give me some advise on what to do/ be careful of?
Any advise would be greatly appreciated!