I just joined up, but I've been dealing with reactive arthritis pain for about
8 months now and have also felt very alone. STP, I have a somewhat similar story....I was diagnosed with Nephrotic Syndrome as a kid, then struggled with a debilitating case of Mono for a year when I was 24. Now at 28, I've been diagnosed with Reactive Arthritis and Fibromyalgia in addition to Depression and Anxiety (which is made worse from the pain and isolation). I haven't been able to work or go out much and have always been an extrovert. I was so happy the other day because we were able to get a wheelchair and my husband pushed me on the nearby biketrail.
I'm currently on Humira (I just had my second shot) and it really isn't too terrible. Thankfully, it looks like a giant pen and you don't see the needle. Prime Therapeutics has a video tutorial that you can watch - I'm super squeamish and managed to make it through. I think your rheumatologist can also administer it if you would prefer that. And I completely understand about
being concerned about
having kids later on. My Mom has a lot of autoimmune diseases too (Sjogren's, RA, Lupus, Raynoud's) and both sides of my family have a history of cancer. My husband's side also has some health issues, so between the two of us, the gene pool isn't looking too hot.
My biggest concern lately has been that I'm taking a ton of medications and I don't want them to interact with each other. I'm on steroids and with the fibromyalgia sleeping has become somewhat nonexistent at times, which was how I would cope with the arthritis pain. I've tried taking benadryl, melatonin, and promethazine to fall asleep (none of which have helped consistently).
In addition to medication, I've tried a ton of other types of treatments. I'm currently in physical therapy to try to increase my range of motion and stamina. I've also included a wide range of vitamins and supplements, heating pads, ice packs, paraffin wax, plant based diets, meditation, coconut oil, epsom salt soaks, essential oils, and the occasional glass of wine. I am also seeing a therapist regularly to help me monitor my moods.
Is there anything else that I can try?? I even have to modify every day activities - like folding clothes on the bed so that I can sit and fold, or ordering nonperishable food from Amazon so I don't have to go to the grocery store as often. My husband is currently in school and is still trying to take care of me and the housework and errands that I can't manage.
Post Edited (Alicia) : 4/13/2016 9:01:42 PM (GMT-6)