Posted 12/4/2005 8:10 AM (GMT -7)
Let me start off by saying, WELCOME TO HEALING WELL! You've got a lot of questions, let me try and answer them in order:
1. ...Anyways, was looking for someone to talk to, too. Why is it under arthritis topic???
A. The Graves was the onset of all my other Auto-Immune issues. There isn't a Thyroid Disorders Topic on this website and I asked some of the other members where I should pose this question. I tried the diabetes Forum since it is part of the Endocine System, but I got no replies. So I went ahead and posted it here since this is where I normally post all my other issues...
2. Are you saying that after complete thyrodectomy you still have Grave's???
A. I now have Grave's Eye Disease. I got this exerpt off of an eye conditions website: Grave's disease is an autoimmune disease, which involves both orbital tissues and the thyroid gland. It is not caused by an overactive thyroid gland. Immune cells "attack" both the eye muscles and the thyroid, leading to dysfunction of both. In fact, although most patients with Grave's disease have an overactive thyroid, patients with normal and even sub-normal thyroid function may also have Grave's disease. It is also important to realize that destructive procedures of the thyroid (e.g., radioactive iodine), and even surgical removal of the thyroid, does not alter the course of the orbital (eye) disease. Interestingly, smoking is associated with a more prolonged and severe course of Grave's disease.
3. Did your eyes get worse after it?
A. Yes. Removal of your thyroid cures the problem of having an overactive thyroid, however, the disease still remains in your eyes.
4. Aren't you supposed to become hypoactive after removing thyroid?
A. Sometimes yes, it depends on how much of the synthetic hormone replacement you are on. I am on .175mcg daily. But it has taken me 7 years to find my happy medium. I have run the gamut of having too much and too little... Too much makes me jittery and I can't sleep... too little, and I sleep all the time and my hair falls out... Nice huh?
5. Have you heard about successfull plastic operations for ophtalmopathy?
A. Yes, there is Orbital Decompression. However, I hear it is a very painful recovery, but it has a very high success rate. I am awaiting consultation from an Opthamalogist to see if I would be a good candidate for this surgery or not.
6. What is Buffalo Hump?
A. The Buffalo Hump is an accumulation of fat on the back of the neck and upper back. This condition can occur with oversecretion of cortisone by the adrenal gland, a condition called Cushing's Syndrome. A buffalo hump by itself is not diagnostic of any one condition. It must be considered in light of other signs, symptoms, and tests. Common causes: extended use of some steroids (glucocorticoids such as prednisone, cortisone, and hydrocortisone). I was on Prednisone.
that... I wanted to make sure I answered all your questions. I never noticed my eyes feeling different, but I could see the difference. They started bulging and at night when I would sleep, my eyelids weren't able to cover my whole eye due to the bulge, so my eyes would dry out.
I've had 2 eyelid surgeries, but I still don't look normal. That is why I am opting for the Orbital Decompression. But I don't know if this is something that I'll have to do in another 5 or 10 years, since the I'll still have the disease in my eyes, know what I mean?
So I am patiently awaiting my consultation to hopefully clear up any more questions I have.
If you have any more questions, please let me know. I wish you the best of luck and hope to see you around here more often! Take care - Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds - Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots