Posted 6/16/2016 2:37 AM (GMT -6)
It looks like our lives didn't turn out anywhere near as well as we had hoped,
as young adults. More like a horror movie. :(
Although I was in so much pain through the years between remissions, I didn't
acquire much disfigurement(except for small knuckle nodules) until about 6 years
ago. The Imuran quit working, a few months after my younger Brother died. Four
years after that, RA had just kept attacking me like a Bully on a rampage. Except
for the times I used higher doses of Pred. I've been on low dose Pred for about
10 years since the other meds were failures.
My right hand has slightly curved eastwardly(forgot the name). I can't flatten my
index finger of my left hand or any of my fingers of my right hand, on the table.
My feet have lost the fatty tissue and my middle toe on my left foot is sleeping on
the one next to it. Plus the RA Neuropathy in a couple of toes is annoying. Needless
to say that it hurts much to walk without shoes. I just got a pair of orthotics which
help so very much to walk again.
All in all, I did pretty good. I feel really bad for the kids with Juvenial RA like my cousin.
Not to be able to run and jump and play with the other kids. I can't even imagine. :(