Yes, a lady from my city whom I met on the net has been on that treatment for about
2 1/2 yrs. She suggested that I buy the book mentioned by Eastcoastgirl which I did. Interesting testimomials. The lady in my city which I mentioned was not in remission the last time I talked to her but she was feeling better. She had tapered off one of her other meds. I haven't spoken to her in quite a while...perhaps I will again soon, to see how she is doing.
The antibiotic is Minocin and other meds are used with it. I think, dairy products, gluton and sugars need to be removed from the diet also.
My Rheumy was happy to prescribe it for me when I mentioned it to him last year since nothing else had been working for me for the last ten years except for Prednisone, much to his disappointment. After thinking about
it, reading the book and some of the site info(http://www.roadback.org/), I declined. I think it was because of the long time it took to feel relief by some and the idea and pain of herxing freaked me out. Not sure but it may be possible to die during the herxing experience. If so, probably rare. If I have those bacteria in me, I prefer them alive and happy unless I find out for sure that nothing else works for me.
I would think that this info would be on the Lyme Disease Forum here. I think that I read on the site also that just for the antibiotic it costs over $1,000. in the USA in comparison to cheap in the UK and Canada. That is disgusting and outrageous!
How are you doing on the treatment Eastcoastgirl, or are you are on it yet?? Could you correct me if needed and tell us more about
Type 1 Diabetes - Severe Rheumatoid Arthritis(RA) - Asthma - Hypounawareness - secondary Raynauds - Osteoarthritis - other stuff
Coversyl - Pantoloc(as irritation preventative) - Levemir - Indomethacin - Morphine - Salbutamol - Prednisone - Humalog - Xeljanz - Refresh Ultra - Aspirin(81 mgs.) - Cod Liver Oil Caps - Vit D other OTC
Post Edited (msOuchie) : 7/17/2016 5:47:52 AM (GMT-6)