Thanks for the reply. It's nice to know someone else has had the same symptoms. I did stop taking the prednisone and switched to imuran which I'm currently on and my legs got a little better not much though im still unable to work. I did stop the imuran once and my legs felt great but my proctitis flared and my back hurt really bad. It's almost like an arthralgia that moves around the body. When I'm on imuran my back feels better and the proctitis is controlled but my legs hurt. When I stop the imuran my proctitis flares and my back is in a lot of pain. It just gets transferred around. On the two biologics I've tried humira and remicade I get insomnia, anxiety, and panic attacks. On humira it was real bad. On remicade I only did one infusion and it lasted about a week but I got scared and cancelled the next infusion because I had the same feelings on humira and didn't wanna go through that again cause it was horrific. Yeah, I have a rhumatologist and he said he's never had anyone say they had anxiety and insomnia from biologics so... what do u do.
37 years old in Hewitt TX
Diagnosed with proctitis August 2013
Current meds- lialda 3 a day, 100mg imuran, canasa 1 nightly Multivitamin .
Past meds- prednisone, humira, remicade, apriso, pentasa, delzicol, turmeric, vitamin d3, fish oil, ambien, folic acid, nicotene gum, boswellia.