Could horible pain in knees and hips while on prednisone or imuran be fibromyalgia?

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calvin1242
New Member


Date Joined Dec 2016
Total Posts : 19
   Posted 12/20/2016 9:37 AM (GMT -7)   
I have a huge problem that's kept me from being able to work for a year. I'm afraid I'm about to lose everything. I'm from the colitis forum cause I have proctitis. I've been treated with prednisone and imuran but both drugs cause horrible pain in my knees and hips that makes it hard to walk. Sometimes the muscles in my legs get so tight and they won't relax. I've tried humira and remicade but both drugs give me anxiety, insomnia, and panic attacks but when I'm not on them I'm fine. Hydrocodone does nothing for the pain but if I take xanax the pain almost completely goes away. My dr checked for pressure points for fibromyalgia but I didn't feel any pain when he checked but thinks I have myalgia type tendencies. Does this sound like I have fibromyalgia? I appreciate anything you could tell me.

calvin1242
New Member


Date Joined Dec 2016
Total Posts : 19
   Posted 12/22/2016 9:17 AM (GMT -7)   
Thanks for the reply. It's nice to know someone else has had the same symptoms. I did stop taking the prednisone and switched to imuran which I'm currently on and my legs got a little better not much though im still unable to work. I did stop the imuran once and my legs felt great but my proctitis flared and my back hurt really bad. It's almost like an arthralgia that moves around the body. When I'm on imuran my back feels better and the proctitis is controlled but my legs hurt. When I stop the imuran my proctitis flares and my back is in a lot of pain. It just gets transferred around. On the two biologics I've tried humira and remicade I get insomnia, anxiety, and panic attacks. On humira it was real bad. On remicade I only did one infusion and it lasted about a week but I got scared and cancelled the next infusion because I had the same feelings on humira and didn't wanna go through that again cause it was horrific. Yeah, I have a rhumatologist and he said he's never had anyone say they had anxiety and insomnia from biologics so... what do u do.
37 years old in Hewitt TX
Diagnosed with proctitis August 2013
Current meds- lialda 3 a day, 100mg imuran, canasa 1 nightly Multivitamin .
Past meds- prednisone, humira, remicade, apriso, pentasa, delzicol, turmeric, vitamin d3, fish oil, ambien, folic acid, nicotene gum, boswellia.

CA-Lynn
Regular Member


Date Joined Jul 2016
Total Posts : 24
   Posted 12/22/2016 1:43 PM (GMT -7)   
Those symptoms are more likely related to the Pred than to the DMARDS.

If Xanax resolves the symptoms.....I'd have to wonder if your real issue is anxiety over the RA or other issues.

I was diagnosed 20+ years ago and have been on many forums.....and have never heard of others complain that biologics create the problems you described. I myself have been on MTX for 20+ years and Humira for 6 years.

calvin1242
New Member


Date Joined Dec 2016
Total Posts : 19
   Posted 12/23/2016 6:20 PM (GMT -7)   
I know you're right I've been trying to make the decision to try remicade again for the past 5 days. I've been waking up in the middle of night stressing about it but so far that's the only thing that has taken away the pain from every part of my body and I need to do something. The only thing is I didn't just get anxiety I also got the deepest depression, and insomnia. Just from that one infusion although it did only last about a week and then went away, after that I felt ok. I'm just terrified that it could intensify the more I do it. That's pretty much what happened when i was on humira. As for the imuran and muscle pain prednisone caused the same pain in the same places knees and hips so I wouldn't say it's the imuran but my immune system doing weird stuff. I am curious to see if your leg pain goes away from stopping the imuran though, definitely let me know. Thanks!
37 years old in Hewitt TX
Diagnosed with proctitis August 2013
Current meds- lialda 3 a day, 100mg imuran, canasa 1 nightly Multivitamin .
Past meds- prednisone, humira, remicade, apriso, pentasa, delzicol, turmeric, vitamin d3, fish oil, ambien, folic acid, nicotene gum, boswellia.

calvin1242
New Member


Date Joined Dec 2016
Total Posts : 19
   Posted 2/20/2017 5:35 PM (GMT -7)   
Just wanted to report back. I started remicade again two weeks ago and its crazy but i didnt get any anxiety, insomnia, or panic attacks this time which is great except now i'm afraid that because i stopped remicade after the first infusion and didn't restart until two months later that its not gonna work for me. I could just be worried over nothing and it might just take a little bit for it to kick in. My next infusion is on march 8th a month after my first because of insurance purposes. I guess i'll see how it goes.
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