Hip Replacement

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msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 453
   Posted 3/30/2017 7:18 PM (GMT -7)   
Hi All!

I was wondering if anyone who had a hip and/or knee replacement would mind commenting on their outcome. Items such as time in hospital, pain or lack there of afterwards, amount of time until you could walk without an assistive device, how long the operation took, etc.

I was assessed early March for a hip replacement. Standard here is 4 but I was put on priority 2. I saw my future surgeon(recommended by my Rheumy) a few days ago. He suggested that I have the surgery 2 weeks from now. My brain wouldn't accept 2 weeks since I was expecting it to be in July or Aug(not looking forward to this surgery). Plus this particular Dr. said that there is a good chance that he wouldn't be able to do it since he has many priority cases 1 and 2 ahead of me in the next 2 weeks plus. The Assessment person said that he is normally booked up about a year.

When I said "No" to 2 weeks, he then said the next time he could do it would be 4 - 6 weeks. Perfect for me, so I can wrap my mind around this surgery and put some plans which take time into my future 4 - 6 weeks. My decision may be a big mistake for my hip. I do not know.

Any comments would be appreciated...and thanks! smile
Type 1 Diabetes - Severe Rheumatoid Arthritis(RA) - Asthma - Hypounawareness - secondary Raynauds - Osteoarthritis - Dry Eye - other stuff

Coversyl - Pantoloc(as irritation preventative) - Levemir - Indocid - long acting Morphine - short acting Morphine - Salbutamol - Prednisone - Humalog - MTX(injectable) - Folic Acid - Extra Strength Tylenol - Tears Naturelle II - Aspirin(81 mgs.) - Cod Liver O

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4818
   Posted 3/31/2017 5:52 AM (GMT -7)   
I had my hip replaced in December after battling osteonecrosis for almost 2 years before I was DX'd with it.

A lot of it depends on the condition of the patient, I am in my 30's but many hip replacement patients are in their 70's.

The other thing is where they operate on you, if they go in on the outside of your leg it is more invasive than if they go in on the top/interior of your leg. Each has their pros & cons but mostly it is the surgeons preference. I had my incision on the outside of my leg so it's a slightly longer recovery peroid.

I was up and walking around the same day, things got a little worse days 2-5 due to normal swelling around the surgery area. I also can't take anti-inflammatory meds due to UC which made it a little tougher for me.

I was off all pain meds after 10 days, driving in 3 weeks and back to work full time after 5 weeks.

I'm still going for some PT just to fix some lingering issues because I waited so long to have surgery.

I felt much better after the day after the surgery than the day before I went in, it was definitely worth it. The first couple of weeks were tough to walk around, but with the help of the cane or Walker it was manageable.

I have a thread about it in my signature.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

Post Edited (ks1905) : 3/31/2017 8:15:48 AM (GMT-6)


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4818
   Posted 3/31/2017 7:17 AM (GMT -7)   
You might have to be off of immunosurpressents for a certain amount of time before surgery and you won't be able to restart the meds until after you recover. Mine was about a 6 month window of being off my biological.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 453
   Posted 3/31/2017 7:28 PM (GMT -7)   
Hello Keith:

Thanks very much for sharing your experience with your hip replacement and
for adding the link. It's helpful to know other people's thoughts and opinions also.

My goodness, you're so young to need a replacement already. I'm also surprised
that steroids would do that to a person that soon. Do you have RA also or was that
someone else in the link? You don't have it in your signature so perhaps it was
someone else.

I'm glad that you did quite well with your surgery and you were able to drive
weeks earlier. That must have been a relief for you. I'm sure that you worked
very hard in your physical therapy. Sorry that you had to suffer through the
Ileus. That sounds dreadful.

My Surgeon said that there is no pain after the surgery. Both me and my daughter
thought he was exaggerating. My daughter said,"Even if you get a cut on your hand
there's pain for a while". You say it was stiffness and tenderness but not pain.

I was not told that I would be taken off any of my medications. It does make sense.
My appt with the Anesthesiologist is next on my list. I'll have to make sure to ask
him about that.

So you were in the hospital for 2 days? I was told that I would be in there for a week,
maybe longer if needed. I wonder why that is. I thought 1 week was the normal
time frame for everyone having a hip replacement.

Thank you again Keith for all the information. I really appreciate it. Good luck for your
full recovery.
Type 1 Diabetes - Severe Rheumatoid Arthritis(RA) - Asthma - Hypounawareness - secondary Raynauds - Osteoarthritis - Dry Eye - other stuff

Coversyl - Pantoloc(as irritation preventative) - Levemir - Indocid - long acting Morphine - short acting Morphine - Salbutamol - Prednisone - Humalog - MTX(injectable) - Folic Acid - Extra Strength Tylenol - Tears Naturelle II - Aspirin(81 mgs.) - Cod Liver O

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4818
   Posted 3/31/2017 8:51 PM (GMT -7)   
I ended up in the hospital for 5 days due to the ileus and me vomiting. I could have went home on the 3rd day but I said that I didn't feel well enough to go home due to the onset of ileus, I started vomiting right after I asked to stay longer.

I think the decision on discharge is based upon how mobile you are, I was very mobile the 1st day but stiffened up the 2nd and 3rd day which they said was normal.

I was on high doses of steroids for long periods of time, I'm not surprised that I ended up with some side effects.

I really can't say that it was painful, definitely uncomfortable and difficult but manageable.

I don't have RA, I accidentally clicked on the forum and saw your post. I don't know much about living with RA but I'd imagine that it's unfortunately somewhat prepared you for dealing with a hip replacement.

Through my journey with my hip, everyone that I've talked to said that knee replacements are much more painful than hip replacements.

I don't know if it is feasible for you but my PT doc said that the people who recover the fast from hip replacements are patients who start PT before surgery.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15332
   Posted 4/1/2017 8:59 AM (GMT -7)   
msOuchie, we have a new member in the chronic pain forum that just had her hip done & she is 2 weeks out & doing great. A friend of mine had his done at the age of 70 & he too did wonderful.

The length of the stay depends a lot on how well the person is doing & this could be your drs protocol with his patients. I wouldn't let that bother me. They want the patient to be able to get up & move on their own once they are home. You have to walk because being sedentary after any surgery can lead to blood clots or pneumonia & no one needs complications after surgery.

Keep us posted.
Susie
Moderator in Chronic Pain & Psoriasis Forums

msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 453
   Posted 4/1/2017 11:40 AM (GMT -7)   
Hi Keith:

I'm glad that you accidently clicked on the RA Forum. I remember your name for some reason like I've spoken to you before. That's why I thought you were from this Forum. You're Welcome here anytime.

Oh of course, you would need more time for the Ileus to resolve. Poor you! Good that you told them that you wanted to stay longer. I have several conditions and am on many meds. I'm thinking that they want to make sure that I have no infections after the surgery. Plus with the Rheumatoid, it's going to be harder going since the pain in all my joints and muscles is still lingering which makes it difficult to move sometimes.

Were you in a wheelchair before the surgery? I can't imagine you walking with a bad hip like that. I also have a partially calcified aorta which leads from the heart and the left leg. The aorta in my right leg is good. The other is only mild but I still wonder if that also contributed to my hip problem since less blow flow from that would occur. Too many questions after my appt with the surgeon. But you are answering many of them plus telling me things that I wouldn't otherwise know. smile

Yes, I have heard the same thing about the knee operation. A few people say that they got one done and were in more pain after the surgery than before. They refuse to get the second one done. Not sure how that will work out for them. Yet others say that they were happy to get their knees done. I wonder if it has something to do with different Surgeons. Some are always better than the others plus the PT and the care given afterwards.

Hmmmm! It seems like you have a fancier hip device than I'm getting. That is probably since you are younger and they want it to last as long as possible. I'm way older than you so they give me the usual stainless steel type. She said it will last for 20 years. I told her I didn't plan on living that long anyways
but it better last that long just in case. :D

That's an interesting point about the PT before surgery and makes sense. I do not think that our Insurance would cover the cost of it however. OHIP covers it afterwards though. I could do some before myself. There should be some videos on youtube.

Thank you again for the information. Sorry, that I talk too much. smile











smilewinkgrin
Type 1 Diabetes - Severe Rheumatoid Arthritis(RA) - Asthma - Hypounawareness - secondary Raynauds - Osteoarthritis - Dry Eye - other stuff

Coversyl - Pantoloc(as irritation preventative) - Levemir - Indocid - long acting Morphine - short acting Morphine - Salbutamol - Prednisone - Humalog - MTX(injectable) - Folic Acid - Extra Strength Tylenol - Tears Naturelle II - Aspirin(81 mgs.) - Nabilone -

msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 453
   Posted 4/1/2017 1:16 PM (GMT -7)   
You're so right Susie. It's better to stay until the person is able to move well enough and are feeling up to par
otherwise. I had Pneumonia and Sepsis from a biologic in Sept, I sure don't want that to happen again.

That is good to hear that your friend is doing well after the hip surgery. If a 70 year old can do, so can I. smile
Also thank you for mentioning the person in the Chronic Pain Forum. I hadn't noticed the post. That should be helpful also when I read it.
Type 1 Diabetes - Severe Rheumatoid Arthritis(RA) - Asthma - Hypounawareness - secondary Raynauds - Osteoarthritis - Dry Eye - other stuff

Coversyl - Pantoloc(as irritation preventative) - Levemir - Indocid - long acting Morphine - short acting Morphine - Salbutamol - Prednisone - Humalog - MTX(injectable) - Folic Acid - Extra Strength Tylenol - Tears Naturelle II - Aspirin(81 mgs.) - Nabilone -

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15332
   Posted 4/1/2017 4:49 PM (GMT -7)   
msOuchie, he & his wife have done nothing but travel the past 3 years!! They have traveled abroad & through out the states. A lot of these trips required a lot of walking, especially abroad. He needed this done for close to 25 yrs but because of fear of surgery, he didn't. He said had I known I would have done it much sooner. Prior to surgery, sitting was a huge issue, could not put both feet flat on the floor while sitting in a chair. That happened immediately. He said being out of that incredible pain is wonderful.

Also, use this time to prepare for your return home from the hospital. I would bet you will come home with a walker, make sure to have throw rugs off the floor, anything that would impede walking through the house. Either prepare some meals to freeze or buy some. Invest in a reacher, it can grab stuff off of the floor, can be bought at Walmart or any drug store. Anything that makes your return home easy. The post reads knee pain after TKR. The member's name is CindyDavid. She is just 2 weeks post op.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4818
   Posted 4/3/2017 8:09 AM (GMT -7)   
msOuchie said...
Hi Keith:
Were you in a wheelchair before the surgery? I can't imagine you walking with a bad hip like that. I also have a partially calcified aorta which leads from the heart and the left leg. The aorta in my right leg is good. The other is only mild but I still wonder if that also contributed to my hip problem since less blow flow from that would occur. Too many questions after my appt with the surgeon. But you are answering many of them plus telling me things that I wouldn't otherwise know. smile

Yes, I have heard the same thing about the knee operation. A few people say that they got one done and were in more pain after the surgery than before. They refuse to get the second one done. Not sure how that will work out for them. Yet others say that they were happy to get their knees done. I wonder if it has something to do with different Surgeons. Some are always better than the others plus the PT and the care given afterwards.


That's an interesting point about the PT before surgery and makes sense. I do not think that our Insurance would cover the cost of it however. OHIP covers it afterwards though. I could do some before myself. There should be some videos on youtube.

smilewinkgrin


No wheelchair, I would have had surgery sooner if I needed a wheelchair to get around in. I was hobbled and limped sometimes. The way the surgeon explained it to me was that there was no cartilage left and the bone would wear unevenly; so I would have good days and bad days depending on how the bone wore. He was correct and I had some really bad days and some great days. I would just make the most out of the good days.

I never needed pain meds for the joint pain prior to surgery, if that helps quantify my discomfort for you if your trying to compare it to your hip pain.

My aunt had both her knees replaced by the same surgeon a year apart from each other; she had the worst knee replaced first and it went very smoothly. The 2nd knee was so painful that if that happened with the first one then she would have never went for another replacement. Again, it was the same surgeon at the same hospital a year a part. I would think that she was even more prepared for the 2nd surgery so it's all a crap shot.

I'd try to see if there is a way to get PT prior to surgery, especially since you have RA. Maybe they will let you. Otherwise I would try to get PT for RA and while you are there then focus on working the muscles for you hip surgery.

I'm still having a slight difficulty getting my leg across my knee to tie my shoe.

They will give you both a cane and a walker to leave the hospital with, what I needed was a handicap toilet seat, a reacher/grabber to pick stuff up with and the best thing was shoe and sox assistant to help with getting dressed in the morning.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4818
   Posted 4/3/2017 8:14 AM (GMT -7)   
MsOuchie,

I would try to get an answer ASAP about your medications; I was delayed 3 months because I had to wait for Stelara to leave my body before they would operate on me.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 453
   Posted 4/5/2017 6:01 AM (GMT -7)   
Hey Keith: Sorry, the newer posts were not sent to my email the last few days , so I didn't know about them. That has happened before though.

Well, that's a surprise. I figured that you were suffering more during those 2 years when you used the word 'battling". That's why the Surgeon suggested surgery in 2 weeks first in my case. I was in a powerchair.
The only hip pain I had was started earlier in the year when I was getting in and out of vehicles. Then in Oct. when I was raking leaves at my Mom's home, my hip felt a bit painful not bad though. I had asked in Sept if I could have a hip exray. Due to a new computer program in the system at the hospital, I misunderstood the new procedure. So I asked again at my Nov. appt. He told me to get it done right away and he'd phone with the results. He called the next day with the hip replacement news. I was shocked since I expected my knee to go first. Actually, I was right on that point.

Thank God my Hubby was looking for a certain tool and a few electronic parts at a recycle store and in the same area he found the perfect sized, good condition and ridiculously priced powerchair there for me. He sent me a photo and I said, "Gee yes, get it if it works good and at that unbelievable price. I love it! I wasn't expecting to use it that soon but lucky he found it before I couldn't walk with the walker. You never know.

I went from limping(actually the pain was worse in my knee), to using a cane, then crutches, then a walker, then the powerchair. I was doing great with no RA pain in the rest of my body for about a month part Feb and March. Then the day I was scheduled for my front hip steroid shot, I was in total body pain when I woke up that day including my hip. The steroid shot worked well for my hip and I only felt pain when walking. On a good day, I can still walk 8 steps with no pain but I try not to abuse my poor hip since I had already walked on without know that I needed surgery. I was afraid that the Surgeon would say, "no', to surgery when we saw the exray. The hip shot was my Rheumy's idea. Yes, thank you. Knowing the pain differences or similarities are important to know.

Oh your poor Aunt! That blows my theory. Her Surgeon must have had a bad day or maybe there was something else wrong with the second knee that the tests didn't reveal and he had to do the best he could? Definitely, she would have been totally prepared for the second surgery. That's scary! I do hope that her pain is somehow resolved or made a lot less somehow.

Since I have severe RA, I have the high toilets, 2 high commodes(one at my Mom's house), a grabber, long handled back shower brush, the walking/riding devices that I mentioned plus many other items. I was going to order the shoe and sock assistive devices also but forgot about them. Good that you reminded me. I'll have to get on it and some other things.

Yes, I will ask about the pre-surgery PT. I've never heard of it or of anyone else having it that I know of, so I doubt it. But it doesn't hurt to ask. It is a good idea.

I asked the Surgeon if I'd be needing any extra pain killers after the operation. He looked at my list of medications and said, "No, you seem to have enough". He doesn't know that all these drugs don't make me pain free except for that one month recently. I think it's because I went too low on the Prednisone maybe a bit too fast at the end. So I start over but this will go faster since I won't be on the high dose long. He didn't mention about going off any of the drugs. Isn't that the job of the Anesthesiologist? Yes, that could really mess our plans up. I'll obviously be seeing him this month. The hospital called about the surgery day a couple days ago. It is this month so it is in the Surgeon's timeframe.

Well, your surgery wasn't that long ago Keith and you have done so well otherwise. Good job btw!! I'm hoping and praying that you'll be able to perform the mentioned action soon and feel great soon. Are you allowed to lean forward to put your shoes and socks on or is that one of the ways that a person can dislocate the hip after surgery? Or is it too uncomfortable to do because of the surgery?

See...you are a wealth of info. Thank you again. smile
Type 1 Diabetes - Severe Rheumatoid Arthritis(RA) - Asthma - Hypounawareness - secondary Raynauds - Osteoarthritis - Dry Eye - other stuff

Coversyl Plus - Pantoloc(irritation preventative) - Levemir - Indocid - Morphine ER - Morphine IR - Salbutamol - Prednisone - Humalog - MTX(injectable) - Folic Acid - Tylenol ES - Tears Naturelle II - Aspirin(81 mgs.) - Nabilone - Lipitor - Cod Capsules

Post Edited (msOuchie) : 4/5/2017 7:14:02 AM (GMT-6)


msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 453
   Posted 4/5/2017 6:57 AM (GMT -7)   
OMG! Twenty-five years. God love him. That's sad. I'm happy that he is pain free and able to walk now. He probably won't need another one since they last 20 - 30 years. Twenty-five years back, they only lasted about 10 years, I think. I see more travelling in his future. smile

Getting in and out of vehicles was painful for me, in October when raking. It didn't bother me sitting until the morning I woke up on the day of my steroid hip shot. Oh and a few nights while trying to sleep about 6 times.
I used the microwavable bean bags which helped a lot. So I appreciated the otherwise lack of pain.

Oh thanks for mentioning about the throw mats. Didn't cross my mind. Hmmmm! That sounds like baby-proofing the house. That could be a problem for our Bunny who loves to lie on them. As mentioned in Keith's post, I probably have most of the things I need due to my RA. Yes, I just started cooking meals for my Hubby while I'm in the hospital. Since he's a fast food or open a can kinda cook. He does BBQ when the weather is warmer. Hopefully, that works out. I don't know where I would put any food that I make for myself. Our fridge freezer is full and the small one in the basement is filling up fast with his food. And no he didn't ask me to make it. It's just always been my job. Hard habit to break. Thanks again Susie smile Have an enjoyable week.
Type 1 Diabetes - Severe Rheumatoid Arthritis(RA) - Asthma - Hypounawareness - secondary Raynauds - Osteoarthritis - Dry Eye - other stuff

Coversyl Plus - Pantoloc(irritation preventative) - Levemir - Indocid - Morphine ER - Morphine IR - Salbutamol - Prednisone - Humalog - MTX(injectable) - Folic Acid - Tylenol ES - Tears Naturelle II - Aspirin(81 mgs.) - Nabilone - Lipitor - Cod Capsules

Post Edited (msOuchie) : 4/5/2017 8:03:41 AM (GMT-6)


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4818
   Posted 4/5/2017 7:46 AM (GMT -7)   
msOuchie said...

I asked the Surgeon if I'd be needing any extra pain killers after the operation. He looked at my list of medications and said, "No, you seem to have enough". He doesn't know that all these drugs don't make me pain free except for that one month recently. I think it's because I went too low on the Prednisone maybe a bit too fast at the end. So I start over but this will go faster since I won't be on the high dose long. He didn't mention about going off any of the drugs. Isn't that the job of the Anesthesiologist? Yes, that could really mess our plans up. I'll obviously be seeing him this month. The hospital called about the surgery day a couple days ago. It is this month so it is in the Surgeon's timeframe.


Mine was my surgeon, he said that I had to be off the biological(stelara) because it would impair the healing. Are you on MTX? You have a lower immune system on this stuff, just like high doses of Prednisone.

My GI had to sign off on the surgery too. They had a doctor that was independent of the surgeon that had to clear me and my medications for surgery, she followed my progress while I was in the hospital.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4818
   Posted 4/5/2017 8:02 AM (GMT -7)   
msOuchie said...

Well, your surgery wasn't that long ago Keith and you have done so well otherwise. Good job btw!! I'm hoping and praying that you'll be able to perform the mentioned action soon and feel great soon. Are you allowed to lean forward to put your shoes and socks on or is that one of the ways that a person can dislocate the hip after surgery? Or is it too uncomfortable to do because of the surgery?

See...you are a wealth of info. Thank you again. smile


The leg that you had surgery on won't be physically able to cross over your other leg, it takes time to rebuild the muscles to do that. Everything swells up and stiffens in the area. They say that is the last thing that comes back.

One question to ask your surgeon is where is he going to do the incision. If they do it on the inside/top of the leg the recovery process is a little easier and quicker. Mine went in on the outside/posterior because that is his prefered method and I think that I'll need a revision/replacement in 20-30 years.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 453
   Posted 4/6/2017 12:19 AM (GMT -7)   
Yes, definitely a biologic should be removed before surgery. Hopefully, you are doing okay without it for a while. So the independent Dr. was a GI also? Good that they could agree on your med plan before the surgery.

I have many appointments this month and then after due to the surgery. I'm sure that you had as many. I will be asking someone about taking me off a medication. Yes, I'm on injectable MTX. That is the one that I was thinking should be removed but it is too late now since it stays in the body for a longer period of time. I also have to ask about the Indocid. I was on it during my second pregnancy and I was told to stop using it 2 weeks before the planned c-section because it can cause bleeding problems.

The Secretary called today for my appt with the Anesthesiologist and a Nurse. I'm not sure what I'm supposed to do with the Nurse but I will be asking the Anesthesiologist about my meds plan and if anything needs to be changed. He should know also since he deals with medications and patients.

Oh no, I was busy thinking of your leg healing properly so I forgot about mine and possibly having the same problem. Actually, I think I already have that problem or similar. It may be weakness in my left leg and knee pain but I already had a problem lifting my left leg on top of my right leg.

I asked my Hubby to make a round shape that fits up to my knee with a handle out of one of my leather purse straps. The handle has a small piece of Velcros on it so that I can stick it to another small piece of velcros sewn on the inside of the pant leg. I just grab the handle when I need to lift my leg when I go to sleep, if I want to put my right leg on top of my left when sitting down, etc. You may not be able to understand without seeing it but It works well. Of course, the PT comes at different parts of the day to strengthen both legs.

Unfortunately, the Surgeon already told me that he will be cutting me in the same area that you got cut. I didn't realize that there was a choice. Hmmm! Why would they choose the outer side if recovery is longer? Makes no sense. Yes, 20-30 years is a long time, so make sure you have 20-30 years of mostly fun after you have recovered. smile

Have a good day Keith!!
Type 1 Diabetes - Severe Rheumatoid Arthritis(RA) - Asthma - Hypounawareness - secondary Raynauds - Osteoarthritis - Dry Eye - other stuff

Coversyl Plus - Pantoloc(irritation preventative) - Levemir - Indocid - Morphine ER - Morphine IR - Salbutamol - Prednisone - Humalog - MTX(injectable) - Folic Acid - Tylenol ES - Tears Naturelle II - Aspirin(81 mgs.) - Nabilone - Lipitor - Cod Capsules

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4818
   Posted 4/6/2017 8:51 AM (GMT -7)   
Sorry if I confused you, the doctor that oversaw me at the hospital was independent from my surgeon and GI. My surgeon had to justify my medications and treatments to her, if it wasn't standard protocol.

I refused blood thinners due to my IBD and I'm not supposed to take blood thinners or anti inflammatories. My Surgeon went to bat for me and got these mobile compression boots(wore them for 2 weeks) that were just as effective statistically as blood thinners in preventing blood clots. He had to justify it and get the doctor to sign off on it.

I was required to attend a joint replacement education class at the hospital, it was almost an entire day. They ran a bunch of tests on me, blood work, xrays, interviews, etc... I had meeting with nurses, the surgeon and the other doctor. Then I had to go to a class where they explained the surgery, prep for the surgery, things for the hospital, recovery, PT, and life with a joint replacement. It was very helpful. I was the youngest person there, I felt a little out of place.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 453
   Posted 4/6/2017 7:54 PM (GMT -7)   
Hi There:

Oh, okay I get what you meant then.

Compression boots instead of anti-inflammatories too?? I've never heard of that. That is amazing but yet at the same time, that would be annoying. Anti-inflammatories are used several times a day and usually for longer than 2 weeks. How is wearing compression boots for 2 weeks equivalent to taking anti-inflammatories for 4 months? Or would a person have to wear the boots for 4 months?

Did you say "Yes" before the surgery, to a blood transfusion, if needed? I did but hopefully I won't need one.

Yes, someone called me about the class regarding hip replacements a few days ago plus more blood tests(don't know what they are doing more tests for), etc. They better not be asking me for more x-rays. There was about 6 of us in the waiting room that had to have another exray before we were to see the Surgeon. We were all unhappy about that since we had another one not even a week before that last one. We couldn't ask the Surgeon about it(not sure if we all had the same Surgeon)since he was in with another patient. The hip replacement class is next week sometime. Mine is only about 3 1/2 hours long thankfully. They interview us also? What's that about? I thought they already asked me everything that they needed to know. Everybody and everybody's dog knows all my medications by now too. The rest of the people you mentioned, I've seen or will be seeing also.

My Hubby had asked me last summer, if I wanted to go with him on a business trip for this summer. I didn't want to because of the fatigue and pain of RA wearing me out more from the flights and the "vacation" but I said, "Okay". I didn't want a hip replacement but I'm kinda relieved that I don't have to go on the trip with him. Our Daughter may be going with him instead since she hadn't planned her vacation yet. Anyways, I will be in Respite while they are away and the Co-ordinator is coming over here to ask a bunch of questions about me, my situation and he wants a list of my meds also. Lucky I made lots of copies. The Respite should be a more relaxing vacation. :D

Ha! I know what you mean about being the youngest. When I had the first symptoms of RA, I was 24. So I was sitting in the Rheumatology waiting room where everyone else was way older than me. I sure felt out of place. Now I see young people in the waiting room and I'm one of the older ones now(58). Also my Docs were all older than me before. Now I'm older than most of them and I tell them so.
Type 1 Diabetes - Severe Rheumatoid Arthritis(RA) - Asthma - Hypounawareness - secondary Raynauds - Osteoarthritis - Dry Eye - other stuff

Coversyl Plus - Pantoloc(irritation preventative) - Levemir - Indocid - Morphine ER - Morphine IR - Salbutamol - Prednisone - Humalog - MTX(injectable) - Folic Acid - Tylenol ES - Tears Naturelle II - Aspirin(81 mgs.) - Nabilone - Lipitor - Cod Capsules

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4818
   Posted 4/7/2017 3:49 AM (GMT -7)   
I needed the compression boots to prevent blood clots after surgery because I should not take blood thinners, these were portable and I took them home with me for 2 weeks.

I shouldn't take anti-inflammatories so it just made the recovery a little more difficult. My main problem was stiffness and swelling after surgery and it would have helped with that issue.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4818
   Posted 4/7/2017 9:35 AM (GMT -7)   
I don't know if I had a blood infusion; I said yes if I needed it.

I'm very happy with my hip; it has gone much better than I expected, especially the lack of pain part. It's not easy but well worth it.

My other hip is starting to hurt, when I was the surgeon's 2 weeks ago I had them x-ray my other hip. I could see a little bit of damage in my good hip on the x-ray but my surgeon said not to worry about it.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 453
   Posted 4/9/2017 8:47 AM (GMT -7)   
That's good that they have something else available for people who need blood thinners. You sure are teaching me a lot. smile I know the Hip Replacement Class will be very helpful but I find that personal experience is worthwhile in different areas also. Gives a patient a list to look out for and possible alternatives for the problems. And questions to ask at the Class.

I find the anti-inflammatories helpful although I've tried some that hurt my tummy, so I had to go back to the original which may not be working as well as it used to.

I lost a lot of blood during and after my second C-section, since it was an emergency and I had no time to get off the Indocid. But afterwards when I asked if I had a transfusion they said,"No. It wasn't warranted". They would tell you if you had a blood transfusion.

I'm happy that you are doing well after your hip surgery. Good show! That scared me when you mentioned your other hip. Thankfully, it means that you will not need another hip surgery for a long time. Be nice to your joints and only low to moderate exercise is needed. Some people kill their joints with too much exercise especially Athletes. I had both my hips and knees exrayed at the same time. My right hip is good so far(touch wood) but my left knee has no cartilage left, so it's bone on bone. Anyways, my Surgeon declared that I will feel no pain with this hip surgery. We will see about that.....Take Care!! smile
Type 1 Diabetes - Severe Rheumatoid Arthritis(RA) - Asthma - Hypounawareness - secondary Raynauds - Osteoarthritis - Dry Eye - other stuff

Coversyl Plus - Pantoloc(irritation preventative) - Levemir - Indocid - Morphine ER - Morphine IR - Salbutamol - Prednisone - Humalog - MTX(injectable) - Folic Acid - Tylenol ES - Tears Naturelle II - Aspirin(81 mgs.) - Nabilone - Lipitor - Cod Capsules

Post Edited (msOuchie) : 4/9/2017 9:53:25 AM (GMT-6)


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4818
   Posted 4/17/2017 7:53 AM (GMT -7)   
MsOuchie,

When is your hip replacement class at the hospital? Did you find out if you need to be off of MTX prior to surgery?
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 453
   Posted 4/21/2017 4:25 PM (GMT -7)   
Hello Keith:

My hip replacement class was yesterday. Thanks to you for asking, we made it to the class. The info/resources that she offered was very helpful. Oh and one of her topics was about pain and how to deal with it.

I had a discussion another day with the Anesthesiologist and the Nurse plus I had more blood tests. Our meetings were about 1 1/2 hours.

It was the Anesthesiologist who told me that I would be off of the MTX and practically everything else. The Indocid, I've been taken off for a week. The only meds that I'll be on is the Prednisone - he wants me on a higher dose for the day - and the Morphines. He only wants me to take 4 units of my Levemir Insulin the night before. The Humalog will be in the i.v. during surgery.

My Surgeon said that the RA had caused my hip problem and the OA was the cause of my knee cartilage being destroyed. I asked about the Prednisone having something to do with the damage. He said, "No", since I have been on lower doses most of the time, that it had little to do with the damage. He could tell by my ex-rays, other tests and my history files. That's good to know. He said many people have not been on the Pred. but they still end up with major damage after so many years of uncontrolled RA and OA since they are progressive diseases and some of us are drug resistant. It can affect us differently.
Type 1 Diabetes - Severe Rheumatoid Arthritis(RA) - Asthma - Hypounawareness - secondary Raynauds - Osteoarthritis - Dry Eye - other stuff

Coversyl Plus - Pantoloc(irritation preventative) - Levemir - Indocid - Morphine ER - Morphine IR - Salbutamol - Prednisone - Humalog - MTX(injectable) - Folic Acid - Tylenol ES - Tears Naturelle II - Aspirin(81 mgs.) - Nabilone - Lipitor - Cod Capsules

Post Edited (msOuchie) : 4/21/2017 5:30:34 PM (GMT-6)


Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 6030
   Posted 4/21/2017 5:25 PM (GMT -7)   
Hey there msOuchie! I'm so glad you posted and your surgery is done. How are you doing? Do they have you walking now? How's the blood sugar?
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Check out the following site for more info on blood sugar:
www.phlaunt.com/diabetes/

msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 453
   Posted 4/22/2017 1:05 PM (GMT -7)   
Hi There Lanie:

Good to hear from you!! No, I haven't had the surgery yet. Sorry, that was the Hip Replacement CLASS that I was talking about in my thread. Hopefully that was my last meeting/blood works.

They do plan on having us walking the day after the surgery with a walker.

My blood sugar has been pretty good at home but I'm concerned that the night before the surgery, the Anesthesiologist wants me to only take 4 units of Levemir when normally I would take 7 units. Generally I wake up with a 81 (5.0) - 120 (6.6) which is good for me but with DP it rises pretty fast afterwards without Insulin even without consuming anything. They will be giving me Humalog in the I.V. at the hospital but I do hope that they know what they are doing with Diabetes and Insulin. They prefer to keep PWD on a higher number during surgeries thus no seizures. He also wants me to double my Prednisone for the day which will cause me problems for a while. Oh well, I'm just hoping for no infections and easy healing.

Pretty day here, sunny but cool. I hope you are enjoying a lovely day Lanie!! Thank you! smile I'll let you know.
Type 1 Diabetes - Severe Rheumatoid Arthritis(RA) - Asthma - Hypounawareness - secondary Raynauds - Osteoarthritis - Dry Eye - other stuff

Coversyl Plus - Pantoloc(irritation preventative) - Levemir - Indocid - Morphine ER - Morphine IR - Salbutamol - Prednisone - Humalog - MTX(injectable) - Folic Acid - Tylenol ES - Tears Naturelle II - Aspirin(81 mgs.) - Nabilone - Lipitor - Cod Capsules
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