Resistant Starch?

New Topic Post Reply Printable Version
38 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Scott007
New Member


Date Joined Apr 2017
Total Posts : 17
   Posted 6/8/2017 10:50 AM (GMT -7)   
Best wishes to all of you!

Post Edited (Scott007) : 12/1/2017 7:13:21 AM (GMT-7)


Bstrong
Regular Member


Date Joined Jul 2010
Total Posts : 147
   Posted 6/9/2017 3:43 PM (GMT -7)   
Woow I am impressed thank you for posting. So far the diet works for me and I am in remission 1.5 year now ( I was on Humira for 6 years now only Plaquenil 200 mg / day) but good to know that there are other options for us. .

Just out if curiosity how does your diet look like?

Good luck with all and please keep us posted from time to time!

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1883
   Posted 6/10/2017 12:31 PM (GMT -7)   
Scott, do you think the resistant starch healed you leaky gut and then helped with the RA? That's awesome!
Sjogrens syndrome 2/15 via lip biopsy: Seronegative RA , fibromyalgia
colitis-resection 11/10, hashimoto's thyroiditis, morphea, GERD
Meds: plaquenil, synthroid, Januvia, nexium, restasis, estrogen patch, prometrium, VSL #3, evening primrose oil, Omega 3 supplement-Maxi Tears.

BadDay
Forum Moderator


Date Joined Jan 2011
Total Posts : 1052
   Posted 6/11/2017 10:17 PM (GMT -7)   
there was a program on SBS recently titled "Gut Feeling
Season 2017 Episode 17 "
this talked about the connection between the bacteria in the gut and certain diseases
it can be a very interesting area as an ex nurse myself I tend to sway toward traditional medicine But as my years of ill health go on and I get more and more ill effects from talking different medicines I am being more open to alternative sources as Really before traditional Doctors they treated people for 1000's of years with herbs ect and most current medications were derived from natural till Big pharm synthesised and patented them
Yes Many medications Work and Save Lives and it would be Foolish to turn from them without due care and consideration, but it is always good to discuss different or complimentary treatments
My Husband has a lot of tummy troubles so I will get him to look into this as you say we tend to down play the importance of Water I have had hubby drink more water and it has helped in a short time he has been doing it
FORUM MODERATOR Rheumatoid Arthritis for 30Yrs. Asthma,Fibromyalgia,Osteoperosis,Cervical Spondalosos,Degenerative Disc Disese,Disc Bulges, Diabetes,Heart SVT & AF, Sleep apnoea,Nocturnal Respiratory Failure,Panic Attacks,Anxiety
on; Methotrexate , Arava , Endone, Targin 20mg (oxycontin) , Prednisone, Metforman(Diabex) , Tambocor. Oxygen & Cpap, Prolia Injection ,Lyrica

BadDay
Forum Moderator


Date Joined Jan 2011
Total Posts : 1052
   Posted 6/13/2017 6:11 AM (GMT -7)   
Hi Scott the name BadDay was typically when I found this forum I was having a terrible bad day and decided to join and couldn't think of a user name or those I thought of were taken then I thought - what a bad day idea and there it was
when you say potato starch do you mean you eat potatoes or is there a product from health stores that is potato starch ?
I would Love to cut some of my medications as I know many of my "illnesses" are if not directly at least in some way from medications
I can't stop the prednisone as been on too high doses for too long so all I can do is try to keep it low
and I looked at my drug cupboard when filling my weeks worth of pills and wondered which ones I could safely cut out and where to start. then I buckle and just refill it as usual.
FORUM MODERATOR Rheumatoid Arthritis for 30Yrs. Asthma,Fibromyalgia,Osteoperosis,Cervical Spondalosos,Degenerative Disc Disese,Disc Bulges, Diabetes,Heart SVT & AF, Sleep apnoea,Nocturnal Respiratory Failure,Panic Attacks,Anxiety
on; Methotrexate , Arava , Endone, Targin 20mg (oxycontin) , Prednisone, Metforman(Diabex) , Tambocor. Oxygen & Cpap, Prolia Injection ,Lyrica

msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 459
   Posted 6/13/2017 11:20 AM (GMT -7)   
Hi Scott:

Sorry that I missed your first post that was deleted. I find this very interesting. I heard of Resistant Potato Starch last year on another site. The man who mentioned it was trustworthy from what I heard. He however was telling people about it to help with Diabetes...if I remember correctly Type 2. I've had Type 1 since I was 3, so I figured it wouldn't work for me. I'm doing okay with it anyways. It's the severe RA that's a real pain. smile It has quieted down for about 4 days again since our weather has been more stable...actually HOT.
Anyways, I would sure try the RPS if it helped my RA.

Last September 2016, I ended up in the ER because of extreme physical pain, fever, Pneumonia, Sepsis (CRP 150) because I had tried the Xeljanz from May 2016 until the ER visit in Sept. It did work for 3 months. None of the other biologics have worked for me otherwise. I have been on Pred for about 11 years but mainly a lower dose. My Rheumy said no more biologics for me. I'm glad that I tried them though since there is a chance that a new drug will work. I've tried many things through the years or deleting things like dairy, other foods, etc. I've always drank lots of water since I was a kid and I was on low carb before, now moderate when I get some appetite. MTX kinda kills that.

Thanks again for the RPS reminder.

msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 459
   Posted 6/15/2017 1:38 AM (GMT -7)   
Yes, I was told it was a biologic, from some people on this forum a ways back. I believe I wrote a post in the same thread about it not being a biologic but as usual they didn't respond, so I don't know if they looked it up or believed me or not. I called it a biologic to appease them (if they are still around) ;) . I know I shouldn't. I always look up the info on medications that I may be taking. It definitely did not say that it was a biologic. Yes, it's always the almighty dollar isn't it?

I'm surprised that you didn't see a CRP as high as 150.0. Evidently, It gets worse:

http://www.healingwell.com/community/default.aspx?f=17&m=2390034

I was looking at my Sept. hospital discharge papers and all of the tests and results were present also. My CRP was 104.7 the day I arrived and it peaked at 150.0 the next day. It was 80.0 the day I left. Well, I'm still in some pain even though it's summer, so I will try the RPS. I would still know if it was working. Thanks for the directions. That's helpful. What if a person misses the glass a day however? When I was young, I was on fewer drugs than now. I swore that I would not take many drugs. Surprise! :/ Without meds people with severe RA would be crippled in short order and RA can kill a person to. So no choice really. We do enjoy being able to get out of bed by ourselves without severe pain and walking, etc.

Post Edited (msOuchie) : 6/15/2017 2:41:47 AM (GMT-6)


Don_D
Veteran Member


Date Joined May 2013
Total Posts : 548
   Posted 6/15/2017 6:08 PM (GMT -7)   
I am still taking the starch but have cut the amount. I had tremendous gas as a result of 2/3 cup that even after a month did not recede. Im gassy to begin with so this was seriously at ridiculous levels and was very hard to control. I also had loose stool the entire time with bouts of diarrhea. I cut the amount by half and took it for another month that way. I am currently taking about 2 TBL spoons and not every day. I just can not handle the effect it has on my bowels at those levels.

Now, I have been doing better. In fact my tests are looking much better as well. I am still having bad days but even they are much better. I have cut my pain meds by half. So, there very well may be something to this. Time will tell. I have had this disease for 25 years now so I don't expect I will be having any speedy recoveries at any rate.

Xaljanz is some nasty stuff. I was given it by my Doctor, told it was another biologic (in pill form) and after taking it for 3 days my gut swelled badly and was super painful. I stopped it right away. I know others have had good results from it however so take it for what it's worth.

Interesting that you mentioned starvation diets Scott. I live down the road from a place notoriously known as Starvation Heights. Look it up online, it has quite the gruesome past. On another note, I fast on occasion for reasons of faith but back in the days when I was looking at diets heavily I fasted for 3 days and on the 3rd day my inflammation was noticeably improved. I was in the middle of a serious flare as well so it was pretty amazing. Sadly, when I began eating even greens the swelling and inflammation returned.

I am very skeptical about the whole leaky gut phenomena. I have tried paleo and other diets and had no results from them whatsoever. Even over long periods I saw no relief from my symptoms and my wife as well started chiding me about paleo because it is very hard to not fudge when you have a family.

Thanks for starting up another thread, it will be good to be able to check in from time to time and see how others are doing. Oh and I did speak with my Rheumy about it as well and she was all for it. smile

msOuchie
Regular Member


Date Joined Dec 2011
Total Posts : 459
   Posted 6/18/2017 3:27 AM (GMT -7)   
Hey Scott:

I do not recall who they were but I do not think that they said it deliberately. I figured that they honestly did not know and perhaps they did not like being corrected. I make errors too and I do not mind being corrected. They probably took the info to heart especially after looking it up to make sure. No biggie that way. If it had been said deliberately, then I would agree with you.

Or perhaps they do not like me. That's no biggie to me either. I know the experiences that I have gone through good and bad and I'm doing all that I can for myself that helps me. I know that I've helped many others through the years on many sites with Type 1 D and severe RA/RD with my experiences and other info that I've researched for them. With links when needed. Like everyone, I'm still learning new things like from you, as one example, that may work and what experiences others go through. Like most, I'm on other sites to learn and to share also.

Through the many years, my Rheumy was happy that I wanted to try the older drugs(since that's all there was) and some worked for me much better than the new ones that came out, so that I could hopefully get myself into better condition. If I "rarely" didn't want to try one, then he was okay with my decision since it's my life.

What bugs me is when someone tells everyone that they've been on such and such a drug for "this" amount of time and it will work for other RA patients too. This is not necessarily true. As so many people have stated, we are all different and just because a drug works for some people, that certainly doesn't mean it will work for everyone. Many of us have been there, done that, so we know. They should add the word "may" work for you(and others) also. Plus, all drugs do stop working for people eventually. Some people are luckier than others that the meds work for them in the first place and/or for a longer span than others. Some of us have not been that lucky, so we have to take Pred. If we didn't need it, we wouldn't take it. Duh!

I do agree with you. Your CRP was probably higher somewhere in those first 2 years. Gee, the Enbrel worked quicker on you than on some other RA sufferers. That certainly happens also, as you know. Good for you with the 5. That is amazing to me. smile

Oh, that's good to hear that we are able to miss a day of RPS, with no consequence. Thanks for letting me know. Like others, I occasionally forget one of my meds OR I'll test my blood sugar, then I'll forget to take a shot because I got distracted by something else. Thankfully, not too often.

I'm pooped, so I'll read the link tomorrow. Thanks for that also. It should be interesting.
Have a great day Scott!

Bstrong
Regular Member


Date Joined Jul 2010
Total Posts : 147
   Posted 6/20/2017 1:51 PM (GMT -7)   
Hi Scott007,

I read all your posts they are very interesting. Even that I am in remission from RA I realize it is "remission" I didn't cure from RA but luckily this state of remission remains and hopefully will remain for long. I deaply believe in diets and try to read and learn about them as much I can. Thank you for answering my question about your diet! As the idea of eating / drinking potato starch sounds very interesting and it looks like really makes sense I learned through the years that the starch is not very good for people with RA. Do you think it is because all the changes which happened through the years that starch in all the products is no longer "the starch" from hundreds years ago ? Same as with gluten? The resistant starch doesn't cause the inflamation? I don't know much about starches I learn a little bit now. Thank you.

Bstrong
Regular Member


Date Joined Jul 2010
Total Posts : 147
   Posted 6/21/2017 11:00 AM (GMT -7)   
Thank you for the explanation and sharing your story. I totally understand you, my Grandmother suffered from gout and RA. I got sick when I was 33 and was next in the family;later on I learned that my uncle cousins have some symptoms but I don't know the details. Before I got sick I had GI problems for around 10 years, constipation, hemorrhoids, bloating, gases, blood in the stool. Then it started with elbows pain, knees, feet, fingers toes and unbearable pain throughout the whole body. I was on Prednisone couple times, Plaquenil and after a Year of experimenting with different medications my rheumatologist put me on Humira. I felt great but didn't stop my research as I believed that my gut problems led to RA. My GI suggested colonoscopy as my symptoms were similar to Crohn so he wanted make sure that I wasn't miss diagnosed. Everything was fine and he suggested higher intake of vegetables and fruits plus whole grain diet.

All my symptoms stopped on the Humira GI symptoms too as that medication took care of tge inflamation through my whole body. But my goal was to stop RA meds one day, I hated to inject it into my body every other week. In 2015 as 39 year old I had a stroke. When I was going to ER that day I didn't know what's going on but the only thing I was thinking- what that Humira did to me. I had vertebrae disection - where one of the arheries was squeezed restricting blood flow to the brain ( the effect of sudden head and neck movement to the left side) rare case of ischemic stroke. Nobody ever confirmed Humira had anything to do with that and after some time I started to believe that there is no connection. In the hospital they discovered blood thinning disorder - phospholipid syndrome which is connected to RA and actually contributed to my stroke.

I am in therapy for 2nd year and on disability, 7 months before the stroke I started Paleo diet I think that contributed to my remission, I am thankful that I don't need to deal with after stroke problems and RA. Scared that my RA can return I constantly look for answers. I may try resistant starch once I am done with cadida diet. My GI problems came back with Candida overgrowth so dealing with that now.

Thank you!
RA - diagnosed July 2010 until December 2015

CURRENTLY IN TOTAL REMISSION

Plaquenil, Vit D 700 IU, Vit B complex, Vit C

Warfarin, Baclofen

Bstrong
Regular Member


Date Joined Jul 2010
Total Posts : 147
   Posted 6/25/2017 12:34 PM (GMT -7)   
Hi Scott007,

Yes There is something like Candida diet basicaly you are avoiding sugar, yeast, anything what can hold mold- deli products, peanuts, aged cheese, fermented food, mushrooms etc. I have the whole list, avoiding these products will starve the Candida. Everybody should have some amount of Candida bacteria in the gut but if you have too much it's not good and actually Candida overgrowth had been linked to autoimmune deseases like RA, Hashimoto etc.. that's why one of my post was the question if anybody on the forum was ever diagnosed with Candida overgrowth. After being in the hospital for a month I lost some weight and stopped Paleo for a while. I couldn't cook myself so most of the food was ordered in the store and not always fresh + medications and my sweet tooth that's how I probably got it..

Food sensitivity test - blood test was done by Dr Naturopath and among other things my Candida level were very high. Along with the diet I also take probiotics ( candida control) and now different kind. GI doctor can also prescribe stool test which may show this problem but my doctor never did even if I had most of the symptoms. The diet takes months to take care of Candida overgrowth from 3 to even 6 or more depends from person to person and how good you are with your diet. I was told that when I am done with my prescribed probiotic and feel like my symptoms are better or gone I can retest Candida to see if the levels are back to normal. I read that stool test is more detailed so I may continue with that. I can only say that after 5 days of Candida diet 90% of my GI symptoms were gone. I don't feel like I am 100% there yet and I have probably around 2 months to finish my supplement so I continue to do my best with the diet.

Post Edited (Bstrong) : 6/25/2017 1:37:33 PM (GMT-6)


chrisnyc
New Member


Date Joined Jul 2017
Total Posts : 1
   Posted 7/24/2017 2:06 PM (GMT -7)   
Dear Scott007,

Just discovered you today. I am 007ing with all of this, details later, but in the mean time: what do you think of histamines, particularly H4, and it's influence on autoimmune disease, including palindromic arthritis? A low histamine diet does not include white potato or fermented foods. Your opinion will be so greatly appreciated. My sister was diagnosed with RA and now instead Palindromic arthritis. The curve ball is that the sun gives her the terrible flares, and that is not being addressed ( no, not lupus pretty sure). When she takes antihistamine helps, but not good enough. Instead of methotrexate, starting soon on hydroxychloroquine. I am researching other ways to go... she has a bad stomach and is gluten free for along time now. She did have benign polyps in colon. DX RA 2014, now a dr says not RA but palindromic arthritis. It got really really bad recently, so now we have to take action asap! Thank you for your time to this, it is much appreciated. ( ps she has had a host of ailments over the past decades, including EBV, Lymes)

constantpain
Regular Member


Date Joined Mar 2013
Total Posts : 36
   Posted 8/8/2017 11:49 AM (GMT -7)   
Hello I have been following this thread for awhile. I also started the Resistant Starch because I am open to anything that comes in regards to this disease. I was diagnosed 4 years ago with RA and put on plaquenil immediately and decided on that till it got worse and then Sulfasalazine was added and recently started Enbrel, through there Safety Net foundation. Its been 8 weeks and although no side effects it hasnt helped in relieving pain. So what I was wondering Scott007, do you think that the resistant starch would help me even though I have never had inflammation. I get tested every month, Crp and Esr and always very low. I keep reading about everyone having inflammation and the resistant starch helping for that in general. I have been trying the resistant starch now for 2 months, yes am very gassy but I havent seen an improvement as of yet. I'm interested in your opinion. When I was first diagnosed my RF was 57 and now its normal but my anti-ccp is 250 which the Rheumatologist claims that its bad and I will be in a wheel chair at some point. So Im open to trying anything that may help. Thanks.

Sunnygirl
New Member


Date Joined Aug 2017
Total Posts : 7
   Posted 8/18/2017 7:42 AM (GMT -7)   
Hello Scott007,

I am brand new to this forum and through my search on the microbiome, found your information about resistant starch! I find the positive scientific research to date very intriguing and am continuing to research through the articles that you have mentioned!
I have had RA (diagnosed) for 5 years and am on the antibiotic protocol! I have had success up until a couple of months ago. It started again with what I thought was just another flare, but it has continued to date. Even though the antibiotics are low pulsed doses, I can only imagine that I don't have much good bacteria, even with good probiotics.
I will be starting the potato starch daily and hope to see some results in the coming months by changing my intestinal microbiome. I eat clean, tried lots of the specific dietary regimes. Eating whole foods, nothing processed, low sugars definitely makes a difference but hasn't put it to rest obviously, as it has once again raised its ugly head!
Thank you for bringing this information to light, sharing your background, wealth of knowledge and experiences!

Sunnygirl

Sunnygirl
New Member


Date Joined Aug 2017
Total Posts : 7
   Posted 8/19/2017 3:22 PM (GMT -7)   
Hi Scott007,

The antibiotic protocol is an old treatment (and a registered DMARD), that a doctor by the name of Thomas McPherson Brown used successfully, over 50 years ago! His theory was that RA was an infectious agent and he used a tetracycline antibiotic, Minocycline, in pulsed doses to put RA into remission!
When I was diagnosed with RA by my rheumatologist she wanted to give me her 3 ingredient "cocktail" to hit the RA "fast and hard"! I had read about the DMARDs and biologics and they frankly scared the hell out of me, so I researched! I found this protocol and figured it was the least toxic to my body! I had to beg my rheumatologist to allow me to try it, as her belief is, that it is "old" and slow acting! I was firm with my request to try it first, at least to see if it worked! It put me into remission for 5 years! I take 200mg Minocin, on Monday, Wednesday and Friday! Up until a couple of months ago I had no problems, then I started with what I thought was a small flare that just hasn't stopped!
I do not want to start the harsh meds if I can help it and I am doing and researching everything that I can to avoid that!
I believe a great part of RA begins in the gut and although I strive to eat clean, this is not a one solution remedy but a puzzle with many pieces to put together!
Yes, you are correct that it is an uphill battle! I thought at the time that my decision was the right one, being less toxic in many ways, but in many other ways, as far as my good bacteria goes, it likely wasn't!
My goal is to reduce the inflammation and try hard to re-stock some good bacteria! If I can do that, then maybe I can stop the protocol! Pretty scary thought being as it has been my lifeline these past 5 years!
Keep your great threads coming! Your knowledge of science is wonderful as well and is greatly appreciated!

Sunnygirl

Sunnygirl
New Member


Date Joined Aug 2017
Total Posts : 7
   Posted 8/20/2017 6:01 AM (GMT -7)   
Scott007,

Wow! Thank you sooo much! I did research (or thought I did), this protocol, thoroughly! I did not look at it from the view scientifically though! I had no idea that it has the same target as Enbrel! It was a matter of personal ignorance on my part due to the fact that I didn't want to go on the cocktail offered!
I do read those drug sheets that come with every prescription. I always like to know all the side effects and interactions that can occur, but just never looked deeper into the actual science!
Your background expertise and experience is so greatly appreciated as it has provided me with another view of drugs that I hadn't looked at before!
I think that it is so important that we educate ourselves as much as possible these days! I don't have much faith in doctors as far as "treating" patients today, just because they are taught by big pharma to treat the symptoms with their drugs. They don't get down to the cause of the symptoms. Don't get me wrong,
I know that doctors are not at fault because they are not nutritionally educated and that their intentions are to help those in need! We are truly fortunate to have the brilliant surgeons that are able to repair broken bodies and malfunctioning hearts, but I agree with you that we are losing the war with these super bacteria!
Again, I appreciate you sharing your knowledgeable background in this area! Keep up the great work! I enjoy your posts very much!
I will keep you updated on my progress with the potato starch! I will start with the 100 mg and see how well I tolerate it!



Sunnygirl

Sunnygirl
New Member


Date Joined Aug 2017
Total Posts : 7
   Posted 8/23/2017 5:53 AM (GMT -7)   
Thanks Scott007,

I have been to his website several times and I have read many of his articles! I will check out the video!

Sunnygirl
New Member


Date Joined Aug 2017
Total Posts : 7
   Posted 8/30/2017 3:53 AM (GMT -7)   
Hi Scott007,

Glad that you like the McDougall articles! I couldn't follow his diet, personally as I don't fully agree with some of his theories on fats and oils!

I think that it is very hard when you are in pain to see beyond the prescription drugs! I am trying the resistant starch, but I am going to have to go to my rheumatologist soon I think, as the Minocin slowly is not doing it's job and more and more pain and stiffness creeps in!

Her first line of medication will be methotrexate (maybe Sulfa.) as she won't give a biological first! I don't look forward to being her guinea pig but I guess that is what most of us are with RA when they are looking for something that works!

Too bad about your unused medication! It is so expensive! I did read however that it occurs all the time as either people reach remission or they cannot tolerate the medication!

Sunnygirl
New Member


Date Joined Aug 2017
Total Posts : 7
   Posted 9/7/2017 6:20 PM (GMT -7)   
Great articles Scott007!
Always informative!
I meant to reply to your previous reply concerning methotrexate over biologics, but didn't get to doing it!
I wouldn't mind some tips on that convincing scientific argument against methotrexate. You are correct to assume that I live in Canada!
We don't always have a choice of specialists such as rheumatologists, as we must be referred by our general practitioner to see one and then we get whomever is accepting patients at that given moment. If we wish to see another doctor than the one assigned, then we are put on a waiting list.
I agree that having some knowledge of the medicines and their side effects is always a powerful tool to have! I have yet to make an appointment, (in fear of the drugs and their effects), but as my flare doesn't seem to be subsiding, I may be forced to make that call!
If you have time, any tips that you think may be helpful, I would appreciate greatly!

Sunnygirl
New Member


Date Joined Aug 2017
Total Posts : 7
   Posted 9/8/2017 4:17 AM (GMT -7)   
Scott007,

Thank you so very much for all of your help with this! I truly appreciate your assistance and great knowledge in this area and taking the time to share it with me and all who read this! I hope that this will help others in the same situation!

I had stopped taking the potato starch last week as I started an elimination diet to see if I could reset my system! I have been very diligent about adhering strictly to the foods allowed in each stage! I am currently on day 9, but have not had any change in the symptoms of my RA! I will restart it as soon as I can reintroduce challenging foods, which is Day 14! I just wanted to follow it exactly as it is laid out to see if I had any reactions to certain foods! I did it 5 years ago when I was diagnosed! Changing my diet helped a great deal although I did not have any reactions to the foods that often can be troublesome! I wanted to try again to see if something had changed.

Potato starch is first on my list to go back into my daily routine!

I like to keep an open mind to all forms of healing! Being skeptical can be healthy in the right situations but it can also be detrimental if one never opens their mind to ALL the different possibilities, especially health, that are available to us! We are all different and what works for one may not work for another, but if you don't try, then you will never know!

Thank you again for this valuable information and your insight on health! Don't be discouraged by skeptics and keep forwarding those interesting articles!

moosie
Regular Member


Date Joined Mar 2013
Total Posts : 27
   Posted 9/14/2017 5:30 PM (GMT -7)   
Scott, I am new to this forum: I find your information very interesting.
1988, at 130 lbs by exercising and eating lean meats, vegetables and fruits. (was 42)
Thru the last 30 years I have gained 100 lbs, by baking for new husband (bread, cookies, pies, etc).
Forgot I was allergic to carbs. Anyway, my health has been deteriorating all these years.
In 2008 found out that I have Factor V (I make 5 x more blood clots than a normal person.)
2015: heel melanoma, no chemo, or radiation. They felt I was at # 1 stage.
Have been so tired, know depression after surgeries and healing, have dealt with IBS, and then constipation from Hydrocodone and Tramadol, but in the last few weeks dried fruit had brought my bm's back to normal.
For the last year the joint pain has been so bad that I just sat. June 30th had my 2nd episode of blood clot in right leg. Am on Xeralto and being desperate called Hematologist with our local cancer center. During my appointment he asked me to try Meloxicam 30 mg once a day. However, going back for a refill, talked with a replacement dr and he asked if I was aware of the side effects of Meloxicam (being blood clots and/or internal bleeding.) Tried to get off Meloxican but the pain was building up and I didn't want to be just sitting again. So succumbed and took 1/2 pill next morning and relief is building. I am so interested in what you are talking about regarding potato starch.
Oh forgot to say, while on the Meloxicam, I felt so well after a week that I am back at my local ymca gym and swimming hole. I am using the NuStep and can do 3 miles in 50 minutes, or 5,400 steps then I go into the pool and up to 20 minutes of water walking. I am for once dedicated - will even go to ymca on saturdays and sundays to fill in for any days that I might miss because of dr appointments.
What you say makes sense, so I am going to try this and give it several months. It will be the least offensive thing I have done trying to heal myself. Thanks Moosie

moosie
Regular Member


Date Joined Mar 2013
Total Posts : 27
   Posted 9/14/2017 7:29 PM (GMT -7)   
Wow, I just read my post and it sounds very disjointed. I do not have a rheumatologist at this time. My GP never suggested it. I am hoping my cardiologist will be able to guide me to a new rheumy?
So I am so thankful for the information on potato starch and on how to address the new specialist on taking a safer drug. I appreciate the fact that you explain things so the common man or woman in my case can understand. My joint pain is in both thumbs, both knees, all joints evenly. Just so thankful for people like you that can comment on their conditions and meds and the honesty. So thank you all. So tired of the pain, not enjoying life and a drag. Moose

moosie
Regular Member


Date Joined Mar 2013
Total Posts : 27
   Posted 9/15/2017 5:05 AM (GMT -7)   
Scott007
Thank you for your prompt reply and information.
I'm sorry I confused you with the term "allergic to carbs ". I meant that if I eat one bite, I can't stay away from carbs. Be it pastry, bread, cookies, etc. It really is so hard not to eat every thing in site.
I find I do very well with basic meat and vegetables and fruit. So adding potato starch won't be a problem. The diarrhea, yes, but I am determined to feel better without pills. Again, thank you for putting things in a way that people can understand. Moosie

moosie
Regular Member


Date Joined Mar 2013
Total Posts : 27
   Posted 9/15/2017 5:12 PM (GMT -7)   
Scott007
Saw my cardiologist today and she is taking me off Meloxicam and on to Celebrex. She felt I wouldn't need to worry about bleeding or clots. Added potassium to take with my water pill, she didn't like my swollen legs. So hoping Celebrex at 200 mg will keep Me pain free.
Hoping to start the potato starch as soon as I find it. Thank you for your positivity. Good health to you and others. I will be watching to see what else is happening.
New Topic Post Reply Printable Version
38 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Monday, January 22, 2018 1:26 AM (GMT -7)
There are a total of 2,919,953 posts in 320,393 threads.
View Active Threads


Who's Online
This forum has 159438 registered members. Please welcome our newest member, Fritz777.
386 Guest(s), 1 Registered Member(s) are currently online.  Details
testuser1234