Resistant Starch?

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constantpain
Regular Member


Date Joined Mar 2013
Total Posts : 40
   Posted 9/16/2017 1:15 PM (GMT -6)   
Hi Sunnygirl,
I just wanted you to know that if you couldnt start on a biologic that Sulfasalazine is a good option. Im on medicare here in the States and it doesnt pay for biologics here and very expensive to buy. The next option was Sulfasalazine and i hurt so bad i decided to try it. First of all its cheap and easily given by docotors and stocked in Pharmacies. It took me a month of taking it to get used to it. It will make you very sick feeling for about a month. And it takes several months to kick in. about the time your going to want to give up on it is when one day you will have less pain. My spouse came home everyday and i would be in the same spot as when he left and boy it will make you stomach burn but eventually you will get better. I have been on it for over 2 years and it quit working as good so now I went through Amgens foundation and there giving me a years supply of Enbrel. Heres what I was getting to that I have been injecting it for 3 months and it hasnt helped me yet. I keep reading on the subject and they say it could be up to 6 months. I am also taking the potato starch for 3 months too. The funny thing is when it helps I wont know which one is helping. I will have to go by how I feel. Also I have to tell you that my toes still deformed while on Sulfasalazine so maybe not as strong as a biologic. I sure wish that we all had accses to same meds that people with good insurance has. So maybe this information will help you some

pedidiva
Regular Member


Date Joined Mar 2007
Total Posts : 62
   Posted 9/17/2017 9:15 AM (GMT -6)   
HI Scott~~

I have enjoyed this thread. I am on a ketogenic diet and implement therapeutic extended fasting (like 72 hours/week) as a way to decrease pain and inflammation (CD4, CD8, and interleukin 6) for my RA. It has been helpful. I have started the resisitant starch.

My question is this: With keto (when one is in ketosis), beta hydroxybutyrate increases (as well as some other ketones). Does the Beta hydroxybutyrate via biochemical pathways become butyrate?

Thanks

Pedi

moosie
Regular Member


Date Joined Mar 2013
Total Posts : 28
   Posted 9/17/2017 5:45 PM (GMT -6)   
Scott007
Have to laugh at myself. I was worried about Meloxicam causing bleeding and or blood clots so was to start Celebrex and it has heart attack warnings along with others. Is there a special blood test I should as for or just ask GP for a blood test to detect ra?
Tried again to stop Meloxicam and again the pain was becoming intense , took 5 hours before I felt better. This stuff is so frustrating!!!!! Please people keep making comments because I really need guidance good or bad Meaning what drugs or food to stay away from. Thanks again. You all help the newbies.

moosie
Regular Member


Date Joined Mar 2013
Total Posts : 28
   Posted 9/19/2017 9:24 PM (GMT -6)   
Scott007
Thank you so much for verifying what I thought I'd found. about. Celebre. I have thought about new doc but in Sequim it is getting difficult to find drs, that take Medicare. I know how tiring it must be for you to advise all of us, but frankly we'd be lost without your in site. Dr did do 2 ra tests today. Lab said it would be 7-10 days for results. Anyway thanks for always showing an interest and trying to help. Moosie

moosie
Regular Member


Date Joined Mar 2013
Total Posts : 28
   Posted 9/21/2017 11:54 AM (GMT -6)   
Scott007
Where would we be without you....I keep re-reading your comments as every time I pick up a little more information.
The 1st RA test came back as negative - I believe that might be the RA factor, the lab said it would be 7-10 days before all testing is done.
Can anyone out there give me the name of a good RA doctor in Seattle, WA. As I go through the information on the screen, I think I have found a good dr and as I read more I find very severe negative comments. As my grandma once said, "You might find a few people who don't like a doctor, but if quite a few make severe comments on a particular doctor, keep looking." I can handle receptionists that are grumpy or rude, but not doctors or their assistants. I want someone who will listen.

moosie
Regular Member


Date Joined Mar 2013
Total Posts : 28
   Posted 9/22/2017 12:26 PM (GMT -6)   
Scott007
I AM SO FRUSTRATED.....
As I said before. Rheumatoid Factor was negative.
ccp antibodies, igg iga was negative with a 3.
I don't want to be sick, I just want to know why I hurt so bad, feel so crappy, and am so tired. I'm sure doctor feels I am a hypochondriac.
Keeps saying it is because I am still 80 pounds overweight.
I believe GOD brings people into our lives for a purpose and that is why I found you and all the others that write in. However I seem to be wasting your time when you could be helping someone else.. I will stay on my potato starch and keep trying to lose weight. Oh, Dr said all blood work came back normal.
Hoping all of you get the answers you need. Thanks again. moosie

moosie
Regular Member


Date Joined Mar 2013
Total Posts : 28
   Posted 9/28/2017 11:11 AM (GMT -6)   
Scott007
Thank you for bringing this to my attention. It is one thing I really keep an eye on. I go in for 6 month check-in with endocrinologist and he frowned as I didn't have a weight loss, and commented on the fact. I told him carbs were almost non existent in my eating. So did blood work and he commented to me later that blood sugars were lower than last time, keep up the good work. So, now I know it takes diet, exercise, lots of water and good people to keep you on track. I so appreciate you and this forum with people that are not afraid to expose themselves to help others. So I keep watching sugars, fats, exercise 5 days and aim for 7, AND keep taking my potato starch because by the new year I will notice a difference. Thanks Scott.

moosie
Regular Member


Date Joined Mar 2013
Total Posts : 28
   Posted 9/28/2017 12:18 PM (GMT -6)   
Scott007
Thanks for the info, so 1/2 coffee cup, = 1/2cup? Some loose stools, should I go to 1/3 cup for a couple weeks? Then 2/3 cup. Need to keep swimming..... Moosie

Ciarraibleu
New Member


Date Joined Oct 2017
Total Posts : 3
   Posted 10/6/2017 12:36 AM (GMT -6)   
Hi Scott007, you said above that eating the starch is about the same thing as a potato a day, why not just eat a potato a day?

(Hi Moosie - I love Sequim, banana belt of WA! My mom used to live there, beautiful area!)

I am 56 diagnosed with RA 3 yrs ago, but I had a feeling before that. All tests are neg except the anti ccp @ >250
I have ulnar drift in both hands, but in my mind I believe it is mild, I can still use my hands but my typing speed sucks, my fingers are in the wrong positions now, lol (I'm a bookkeeper - yikes!)

I refused all RX until a minor back injury when I was given prednisone for the inflammation. I was just amazed at how I felt and asked my Dr to let me keep taking it @ 5mg daily
She said yes only if I promise to go see a rheumatologist. I did and the rheumy immediately wanted to up my pred to 20mg and put me on methotrexate. When I told her that I was not ready for meth or biologics or dmards yet, I was made fun of, dismissed and basically told that I was an idiot and my tendons in my hands were going to rupture eventually.
I left the office in tears but I was more determined than ever to try other things first.

Both knees are very painful, but I have recently started deep water exercise and that has helped a little. It's very hard getting out of bed in the morning, but I still don't believe I am ready for those nasty rx at this point in my life.

Now I am at 7mg pred but I am also taking many natural things, boswellia, krill oil, sour cherry extract, turmeric, probiotics. potassium, vit D and vit C -
In your opinion, do those actually do anything? I did try to look up studies to support the health claims but it's hard to trust what's on the internet.

Post Edited (Ciarraibleu) : 10/6/2017 12:03:04 AM (GMT-6)


Ciarraibleu
New Member


Date Joined Oct 2017
Total Posts : 3
   Posted 10/6/2017 12:44 PM (GMT -6)   
Prednisone holds on to sodium but leeches potassium so I supplement with that and I live in Wa state, land of darkness, so I supplement with D, again only at approved amounts, none of the 2000% that some naturopaths selling supplements tell you.

If I have the choice I prefer to get my supplements from foods I eat but I'm not always good at that, I don't eat out, maybe once or twice a month, but I do cook too much box food which is something I am working on.

I think I will switch out the probiotic supplement with plain yoghurt and slowly add potato starch to see how well I "react" to it.
Hopefully start out at 1/3 cup (does how much water matter, and can drink smaller amounts throughout the day to equal 1/3 to 2/3 or should it be drunk all at once per day?

Also, what about eating raw potatoes? And can sweet potato be substituted? Or purple sweet potato, raw of course.

Post Edited (Ciarraibleu) : 10/6/2017 11:48:13 AM (GMT-6)


Ciarraibleu
New Member


Date Joined Oct 2017
Total Posts : 3
   Posted 10/6/2017 5:52 PM (GMT -6)   
Thanks, I used to hide in the root cellar as a child and eat up my mom's potatoes, i loved them raw! What I've read is that you should peel them, but I never did.
We grew white taters this year and used no pesticide so they are organic (I don't buy organic at the store, too expensive for our crowd.) so I will experiment eating them raw until I can get some tater starch

moosie
Regular Member


Date Joined Mar 2013
Total Posts : 28
   Posted 10/6/2017 6:55 PM (GMT -6)   
Hi Ciarraibleu
I found what you said about prednisone and potassium very interesting. I had a conversation with my son, who has a back problem and his Dr put him on Prednisone without potassium and in the month he was on it he gained 20 pounds. So called him to verify my facts, and I asked him to read up on how the two effect each other. My cardiologist noticed my ankles were swollen and prescribed potassium at ( Klor-Con. M20 ER 20MEQ Tab ). She said
to take the Potassium with my hydochlorothiazide . I am taking 1/3 c of potato starch with water every day. I feel it won't hurt me and if what Scott says is right, which he is, as everything makes sense to me. So I can hardly wait for the new year and feeling better. I don't have any serious diarrhea so will take 1/3c in am and pm.
My mom had colon cancer - upper right part of colon, and what you said makes sense. I have to laugh at myself as my potato starch solidifies and needs stirring. Doesn't taste bad though.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 12/16/2017 2:34 AM (GMT -6)   
I too started with inflammation in my gut. While I had colitis, I developed auto immune disorders like RA, Sjogrens and a skin condition. They were able to operate and take the diseased portion of my intestines out. That seems to be in remission, but I am left with the RA and Sjogrens. I have found some natural remedies that helped me quite a bit. I got some of the potato starch and keep forgetting to try it! Brain fog......
Sjogrens syndrome 2/15 via lip biopsy: Seronegative RA , fibromyalgia
colitis-resection 11/10, hashimoto's thyroiditis, morphea, GERD
Meds: plaquenil, synthroid, Zantac, restasis, estrogen patch, prometrium, VSL #3, evening primrose oil, Omega 3 supplement-Maxi Tears, L glutamine, Alpha Lipoic Acid, Co Q10.

Scott007
Regular Member


Date Joined Apr 2017
Total Posts : 21
   Posted 2/18/2018 2:31 AM (GMT -6)   
I hope all of you folks are doing well and managing your autoimmune disorders. I rarely come to this site anymore. I [and my whole family: wife, son (11), daughter (5)] am still taking potato starch every day (150 grams each). The medical community may never advance to understanding the complex interplay between gut bacteria, resistant starch, colon chemistry, and autoimmune disorders. Potato starch really does work (as long as you take enough). All those meds are not necessary.

For those on the expensive biologics, I have expressed concern that the subsidy by insurance companies could be curtailed in the event of adverse economic conditions. I am afraid to say that that time may be approaching. The potential and probability for a stock market crash next week is now very high. This would be the type of event that would cause concern for executives at these insurance companies.

Take care all.

constantpain
Regular Member


Date Joined Mar 2013
Total Posts : 40
   Posted 2/18/2018 11:51 AM (GMT -6)   
Hi Scott, Glad your doing well! I started the potato starch myself in July of 2017. I have been taking it consistently since then. I talked to you about amazons Butyrate and take that to. I dont measure but do 3 heaping tablespoons of the potato starch. I am also injecting 50 mgs. of Enbrel weekly and also Plaquenil and Sulfasalazine. My rheumatologist just took me off of the Sulfasalazine. He states that my RA is quiet. I dont know if its the Enbrel or Starch. I was happy to hear from you and hope you check in more often. My anti-CCP was 250 when I was first diagnosed and RA 58 when I diagnosed in 2013. I must say I feel much better. I would like to hear from Don, hes been quiet for a log time and wonder how he is. Hes just a nice man and has helped many of us on here with his helpfull comments. I know he made me feel better many times. So Don if your reading this please let us know how you are. You was thinking about starting Retuxin then. Scott, I will keep you updated. Are you doing anything else for your RA besides the starch? Hope to hear from you and Don. Constantpain.

Scott007
Regular Member


Date Joined Apr 2017
Total Posts : 21
   Posted 2/18/2018 3:04 PM (GMT -6)   
Hello Constantpain,

I am glad to hear that your RA is "quiet". 3 heaping tablespoons of potato starch is good. It's great that you have maintained it for 6 months. Don't miss a day. You are on your way to being drug free with a healthy colon. Congratulations!

I don't take anything other than the potato starch for my RA. I have no joint pain and no morning stiffness. I feel absolutely "normal" again. Don cut back on the potato starch due to too much gas. I mentioned to him that this will reduce after a couple months. I hope that he has not given up on it. Many people do give up because they expect immediate results. Autoimmune disorders are the result of decades of an energetically dysfunctional and dysbiotic colon, and repairing that takes time.

constantpain
Regular Member


Date Joined Mar 2013
Total Posts : 40
   Posted 2/18/2018 4:13 PM (GMT -6)   
Well to be honest, My gas hasn't gone away but I will be darned if I am going to quit. I might find out this week cause i just did all kinds of wierd blood test including CCP. If the starch helps me like it helped you it would all be worth it. Thanks for listening, Constantpain.
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