More Tests More Tears

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BadDay
Forum Moderator


Date Joined Jan 2011
Total Posts : 1046
   Posted 6/11/2017 11:10 PM (GMT -7)   
Hi Guys well ive been out of action for a bit as had a bad flare up we moved house and I had heaps of tests going on at same time all I wanted to do was crawl into a ball in a corner of the room
I have had my 3rd visit to the neurologist & had the EEG done and it came back Abnormal this time I got his registrar he basically re-asked all the same questions poked and probed me ordered a heap of tests to see Why it was Abnormal
so I went to get the blood test done which under our health system are usually free and got charged $120 (oh This test isn't covered) would have been nice to know beforehand then went for the next test a nerve test and got another $120 fee (seems to be the preferred amount) then I get electrocuted testing my nerves Pain level HIGH and I was annoyed because I had this Same test done by a different Dr a few years ago if he'd told me he was going to do that I could have saved both pain & money and got him the results from that one

Anyway then I go to have the Dreaded MRI and the last time they tried to do one I had a Full on Panic attack and they said they would Not do one again unless I went to a different place that uses Sedation so we drive the 50km (about 30 miles) to the next town and they inserted a cannula and gave me the First dose Nope Not sedated still Freaking out Then they gave me More So I was half awake/half asleep and handled it pretty well only had a mild panic when the machine stopped making a noise ( I thought they had gone home & left me there-I know silly) Anyway the machine restarted & I was fine.
so then for the rest of that day I was pretty groggy

Anyway Long Story I go to my Local Doctor Tomorrow he should have the MRI results as I don't go back to Neurologist till late Next Month

Meanwhile I am still writing Everything down as I Forget What I want to do can't read a book because I forget what I just read
and I can't carry a cup of tea without shaking and spilling it Everywhere
oh and I am either Angry or Crying depending on the feeling at that minute
shocked
FORUM MODERATOR Rheumatoid Arthritis for 30Yrs. Asthma,Fibromyalgia,Osteoperosis,Cervical Spondalosos,Degenerative Disc Disese,Disc Bulges, Diabetes,Heart SVT & AF, Sleep apnoea,Nocturnal Respiratory Failure,Panic Attacks,Anxiety
on; Methotrexate , Arava , Endone, Targin 20mg (oxycontin) , Prednisone, Metforman(Diabex) , Tambocor. Oxygen & Cpap, Prolia Injection ,Lyrica

BadDay
Forum Moderator


Date Joined Jan 2011
Total Posts : 1046
   Posted 6/13/2017 6:00 AM (GMT -7)   
Hi Alice Thanks,
No I did not get the results of the MRI as we live in the country all tests done are sent to Sydney (main city) to be "reported on" and as we had a public holiday on Monday it slowed things down plus I think they use carrier pigeons it is so slow.
I have been on prednisone for about 30 years first starting for my asthma then the RA and yes was on Very high doses 40mg day for 15-20 yrs I have side effects from that - rounded face, bad teeth Osteoporosis ect
I have gotten down to 7.5mg per day that took a long time to do and I was going up to 25mg at times for a few days then it takes anything up to a month to get back to the 7.5 I decided last time I did that I would put up with the pain & not increase it rather than go thru the dropping down again.
my Rheumy says I can Never stop taking it now as I no longer produce my own cortisone?? so I guess I'm stuck with it but I try to keep getting lower doses.
FORUM MODERATOR Rheumatoid Arthritis for 30Yrs. Asthma,Fibromyalgia,Osteoperosis,Cervical Spondalosos,Degenerative Disc Disese,Disc Bulges, Diabetes,Heart SVT & AF, Sleep apnoea,Nocturnal Respiratory Failure,Panic Attacks,Anxiety
on; Methotrexate , Arava , Endone, Targin 20mg (oxycontin) , Prednisone, Metforman(Diabex) , Tambocor. Oxygen & Cpap, Prolia Injection ,Lyrica

Lisabeans
Regular Member


Date Joined Jun 2015
Total Posts : 144
   Posted 6/13/2017 6:57 AM (GMT -7)   
I am so sorry BadDay. I hope you get your results soon and get on track to feeling some relief.
Lisa
Ulcerative Colitis (remission)
GERD Reflux taking Zantac
Recently low positive ana. Taking Leflunomide (arava).
Also taking Amitriptyline to prevent migraines.
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