Reclast infusion questions

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1 day at a time
Regular Member

Date Joined Nov 2012
Total Posts : 289
   Posted 8/20/2017 8:04 PM (GMT -6)   
I'm not sure I'm in the right forum, but here goes...
Recently found out I have moderate/severe osteoporosis of the spine. Already a chronic pain patient. Have lost 1/2" in height which is not only concerning but annoying because I'm short as it is. I have been told I will need infusions to treat this as my gut is trashed. Insurance has denied Prolia, wants me to try biophosphonate infusions first. Reading the horrible side effect stories has me scared. Currently on the insane vitamin D supplements in addition to calcium bc my endochrinologist says they can't do the infusions until my levels come up to a decent level. I'm a former body builder who tries to stay fit even though my body seems to be falling apart. My father literally broke in half from osteoporosis spinal fractures so I feel I need to do something to prevent this happening to me. Has anyone had these infusions? Right now my HMO wants me to to IV Boniva every 3 months but hoping the once per year Reclast will be approved as I'm not keen on doing infusions in 3 month intervals. Any feedback would be greatly appreciated.

celebrate life
Veteran Member

Date Joined Dec 2014
Total Posts : 2109
   Posted 8/22/2017 1:22 AM (GMT -6)   
Hello 1 day and welcome to HW!
I can't speak to Reclast specifically, but I do know a little about Prolia and xgeva. These types of drugs do great at strengthening your bones, but you do need to be aware of a serious side effect of jaw necrosis. If you have had or plan to have any dental work where teeth are pulled or you have implants, please look into this and talk to your dentist first.
Best Wishes,

New Member

Date Joined Oct 2017
Total Posts : 3
   Posted 10/6/2017 10:05 AM (GMT -6)   
Hi I am new to the forum, but I have had Reclast for 3 years now. It is a once a year infusion. I have not had any side effects. Luckily my bone scans have come back good. I am on in prophylacticly because of long term steroid use for RA.

1 day at a time
Regular Member

Date Joined Nov 2012
Total Posts : 289
   Posted 10/6/2017 10:28 AM (GMT -6)   
Thank you for the responses. How long do the infusions take to administer? Idk why I'm so scared to do this. I do realize pretty much everything has the potential for an adverse side effect. I think that it's the sticking a needle in a vein and running a substance thru my blood is the scary part. Chemo makes sense but for some reason this scares me even more bc it's not a life or death situation. I need to stop reading side effect horror stories on the internet. As I'm writing this, it makes more sense to just do it if it'll prevent me from breaking in half. I don't know what caused mine unless it's heriditary. Just the thought of ending up like my dad overrides my fear of the treatment. His back was so bad his spine literally poked out like a broken bone.
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