welcome to HW! wow...what an ordeal to be going through. as you might have read i too deal with very severe, active and disabling RA along with Crohns and complications. i am on the Humira assistance program. it is a form yourself and the rheummy have to fill out. if qualified, it will cover a percentage of the cost or the entire cost depending on your income and insurance. unfortunatley i had to stop working in May. was cut from my HMO and had no income & no insurance. and in very very poor health.
for starters...it was quite pretentious for someone to state that Humira works for everyone! oh boy oh boy! if i were that doc...i would definitely NOT put that in writing. do RA sufferers have success with it?...of course. does Humira work miracles for everyone?....heck no. and no medication does in that aspect.
you may find that MTX plus Humira will get you back to a point where you are able to function. that would be wonderful, and i truly hope that will be the case.
i've had joint pain related to RA since the age of about 16. also started testing positive since 16 as well....but was told to ignore it because i was YOUNG, and that it was most likely to not cause a problem.
well, now at 24 years old...if i can shower & get dressed, that's a very successful day.
i have to say, that being on Humira since August...what i found to be the greatest benefit it gave me was relief from RA fatigue. i suffered MAJOR pleuritis and costochondritis pain from RA and also heart valve problems, and the Humira improved that as well. BUT....when i hit a flare....those problems DO get worse again.
i wasn't happy with the progress i was making after 5 months of Humira.
so the rheummy put me on Humira weekly. have not been much better since beginning that regime in december. so now i am on a Humira once a week, plus Imuran, plus prednisone to try to stop this flare.
i was advised to give this combo some realistic time and look to feel a noticeable change around March. if not....am onto adding MTX. Remicade would be after that if all else fails.
if you do go on Humira and find little success you can also go onto Enbrel. i was on Enbrel for a year and a half. on Enbrel..i was good enough to finish college.(i mean the bare minimun of showing up & sitting there and going to the hospital [nursing]).
this is a very difficult disease to get a grip on. when caught and treated very early...it is easier granted. but a long standing case is tough.
i want nothing more than to have my career as well. i definitely feel for you!
what can you do now? if you seriously cannot function and take care of and support yourself, i would pursue filing for SSD or at least some sort of assistance in the meantime.
it's terrible i know. i forced myself to work all the way to the end...but when ya have to be carried out of work and to the ER, you're a bit in trouble ya know?
when do you see you doc next?
my heart goes out to you.