Hi everyone, long time no see. The forum has been updated since I was here last. I hope that you all are well.
I was wondering if anyone else has any theories as to just why it is in the night time the pain levels go up so much? I have been thinking about
this because I just don't buy the whole notion of decreased activity etc leading to more awareness of pain that I see given as the reason online in medical blogs.
I actually think they have no idea and are just looking for reasonable answers to give chronic pain sufferers.
The reason I don't buy it is because I have been flared up lately and have been able to do very little during the daytime so my pain levels have been elevated but moderate. Sure enough though every evening around 6PM my pain levels increase and remain elevated through the night. It makes getting any meaningful sleep near impossible.
Another thing I have noticed is that when I am able to sleep finally and awaken the pain levels are very high for the first few minutes. I don't think this is part of the normal stiffness that we all deal with but something different. For instance my wife touched my shoulder this afternoon waking me up as she was leaving the house and the pain was excruciating. It was very brief though and subsided back to the normal dull 3-4 level I usually experience in my shoulders through the day unless I am having a major flare in a specific joint or area.
Anyway, I just wondered if anyone else has had a similar experience also. It seems to be one of those mysteries of this illness that keeps me guessing.
I wish that it meant I could use the time at night productively to get something done but a post here is about
the best I can manage right now. Maybe some prayer time also. That always helps.
I apologize for being away from the forum for so long. The people here really are the best.
Take care, -Don