Been gone for a while, I think I was misdiagnosed.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Jan 2006
Total Posts : 18
   Posted 2/9/2006 6:10 PM (GMT -7)   
I was diagnosed by a regular MD to have RA on the second visit with him. When I look back, I realise he based it solely on the fact that I had Ra factor of 275 confused   I had (and have) lots of problems with my bones, hips, knees, spine, neck. BUT, I have never had any joint swelling. I was started on Plaquenil, and I kept taking it although I never noticed any improvement. I had lots of low-grade fevers, hurt alot where I mentioned earlier, and have felt malaised, fatigued sad and sick in general with only a day here and there that I consider "symptom free"!
This doc. did not listen much and dismissed me, so I sought another doc in hopes that I would get a refferral to a Rheumy to find out what KIND of arthritis I have. Did it happen? Not mad   I live in a small town too, and access to any decent care is many miles away. I find it hopeless to be this out of shape all the time, and I really don't think I have RA at all! RA factor can show during inflammation in  general. I DO believe I have a really bad case of OA, I had problems for many years. As I have researched, it appears to me that I most likely have AS, or IBD with complications in combination w/OA. Don't you think it would be reasonable that I get a refferral to a rheumy? No x-rays have been taken or anything skull ince diagnosis in August. Another RA factor reading of 250 something a couple of weeks ago, despite Plaquenil. I think the Plaquenil makes things worse, especially if it's not RA. I have lost faith in doctors nono   this route of ignorant docs who doesn't listen and are not experts in the field. I have neurological problems in my arms since 3 years back, probably from neck pain that I had for years. A fiery acid pain where I loose strength in my arms, whisking the gravy hurts after only 30 seconds, my arm sort of drops from a fiery painful fatigue. I could probably use a neuro too. I called the only 2 ones in town, and I can only get help via refferral, and they will ony do "consultation" with the regular MD, something I doubt mine will even get into.
Does it all sound blah, to you eyes ? I am tired of trying to get thru to docs (3 in the past 2-3 years), should I really have to move to a bigger city just to get help? Any input on my "misdiagnosis"? LOL! :-)

Veteran Member

Date Joined Nov 2005
Total Posts : 751
   Posted 2/9/2006 10:04 PM (GMT -7)   
o dear G-d what a big bowl of wrong these docs are with you. you are not alone here friend. soudns like you live in fl, b/c that is where all the bad docs are ....and i am not kidding either.
somebody hop in here to help this gal out
9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc. i dont know what else is wrong with me and neither does anyone else!!!

New Member

Date Joined Jan 2006
Total Posts : 18
   Posted 2/9/2006 10:46 PM (GMT -7)   

funny thing, I won't move to Fl then! LOL! I'm accually in a little town, Walla Walla, WA. Nowhere to run here, unless you go to Spokane, then! Good docs there, I've heard. Thanks for your reply, hun!

Forum Moderator

Date Joined Nov 2003
Total Posts : 7119
   Posted 2/10/2006 3:58 PM (GMT -7)   

Noodlearms, do you need to have a referral to see a rheumatologist? Does your insurance require one from your PCP? If so, your insurance company should have a policy that allows you to request a second opinion. It is your right.

If you don't need a referral, then go to the following link and chose Washington and you will see the list of cities with rheumies. There are many in Spokane and but there are some closer, Pasco, Richland, Yakima.

Find a rheumatologist through the American Academy of Rheumatologists Directory

CD, Ankylosing Spondylitis, connective tissue disease,
asthma, PAD, peripheral neuropathy
Please help support this forum. 

Veteran Member

Date Joined Apr 2004
Total Posts : 1539
   Posted 2/10/2006 4:56 PM (GMT -7)   
Keep pushing!

New Member

Date Joined Jan 2006
Total Posts : 18
   Posted 2/10/2006 5:52 PM (GMT -7)   
Thanks Ides and SnowyLynne. I have Medicaid, so i have to have a refferral always. I will call them and see if they will let me go for a second opinion directly via a Rheumy. I don't think they like to have providers not treating their patients according to "da rules" since they are the ones paying for it. I'll keep pushing.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, November 21, 2017 5:13 AM (GMT -7)
There are a total of 2,896,133 posts in 317,873 threads.
View Active Threads

Who's Online
This forum has 157469 registered members. Please welcome our newest member, Azausk.
309 Guest(s), 7 Registered Member(s) are currently online.  Details
RedLabel, Bucko, NiceCupOfTea, Saipan Paradise, ks1905, PA_grandma, FamilyGuy

About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow on Facebook Follow on Twitter Follow on Pinterest
©1996-2017 LLC  All Rights Reserved.