Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Ankylosing Spondylitis

Support Forums
>
Rheumatoid Arthritis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Ms2011
Regular Member
Joined : May 2020
Posts : 69
Posted 3/3/2021 6:46 AM (GMT -6)
Hi, I'm a 40 year old female with a diagnosis of Ulcerative Colitis for the past 4 years.
2 weeks ago I woke up with Sciatica like pains in the front of my right thigh, I've had a few incidents of this over the past 2 years or so and they usually rectify in a few days. In this case it was getting worse and waking me from my sleep. We were having some renovations done at the time in our bedroom and I had been sleeping in my daughters bed for a few days and put the Sciatica down to the firmer mattress and sure enough when I got back to my own bed again the leg issues seemed to resolve. However it has now been replaced with lower, mid and upper back pain and stiffness, not all at once but at varying times of the day, my neck in particular being pretty sore. I've also noticed some twinges of pain in my wrists, elbows and shoulders.
I don't have an extensive history with back pain, I twisted my back in my late 20's which resulted in me being laid out for a week while it healed and if I'm leaning over for an extended period of time in the case of gardening it can take a minute to straighten up but not much else of note.
It doesn't seem any worse in the morning than any other time of the day, rest sometimes helps as does moving and heat. I can go about my life without pain medication, the pain is more of an annoyance and a worry than it is debilitating at the moment but it also doesn't seem to be improving just seems to be plateauing at the level it's at.
Of course when I google symptoms ankylosing spondylitis pops up almost every time and with me already having Ulcerative Colitis I know I'm at higher risk so I am just here to pick the brains of those who have this condition on how it started for you and if what I have written sounds like the beginnings of it.
I am on Humira for my UC for the past 8 months and I know that can also cause joint pain but not in the spine as far as I'm aware.
Sorry for the long post, any advice would be welcome
profile picture
TP177
Regular Member
Joined : Feb 2010
Posts : 137
Posted 3/25/2021 10:58 AM (GMT -6)
Hi Ms,

I just joined this group a few minutes ago and now see your post. I'm in the same spot, UC for 16 years, no issues, then MASSIVE flare up and for the past 3 months feel like someone has beaten me with a baseball bat and I move like a 90 year old in the morning (I'm 51) Waiting on official diagnosis but docs think it is psoriatic arthritis not AnkSpon.

I NEVER had back issues at all.

Humira and Stelara (which I both failed) are supposed to help with the pain, no luck. The only thing that helped me at all was narcotic Rx I had left over from an old ER visit, but NO ONE will prescribe anymore. My only relief is heating pad, epsom salt baths.

Good luck,
P
profile picture
Doggiedo
Veteran Member
Joined : Jan 2014
Posts : 778
Posted 7/5/2021 7:49 PM (GMT -6)
I had UC and had a total colectomy back in 2017. Right after I stopped the predisone my symptoms of arthritis came up. They think I had arthritis for years but just wasn’t diagnosed. Anyway, I also Ankylosing Spondylitis. I was on Humira for the arthritis until last month when I developed drug induced lupus. As far as I know I don’t think they can do anything for the Ank Spond. It’s just a degenerative thing that’s on top of what I have. You might want to get in to see a rheumatologist and get an X-ray- they can tell you more. Best of luck.
profile picture
Ms2011
Regular Member
Joined : May 2020
Posts : 69
Posted 4/23/2022 3:41 AM (GMT -6)
Don't know how I missed these replies 🤔
Anyway, I went to see a rheumatologist nurse in December, she did alot of stretching and bending with me and said I had good flexibility and range of motion but was slightly weaker on my left side.
As the pain was manageable at the time she was happy to see me in 6 months to see how things were before doing any further testing.
Well since the end of March I have been in alot of pain, firstly lower back and sciatic pain then once that subsided the upper back decided it wanted its turn and at the moment am having alot of pain between the shoulder blades, neck and shoulders.
I'm just so fed up with it now, I used to be able to get away without painkillers but find I'm now needing them more.
I've also gone from fortnightly doses of Humira to weekly for my UC.
✚ New Topic ✚ Reply


More On Arthritis

Does Physical Therapy Help Arthritis Pain?

Does Physical Therapy Help Arthritis Pain?

How To Find The Right Mattress For Your Arthritis

How To Find The Right Mattress For Your Arthritis


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2022 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.