Posted 7/22/2021 7:10 AM (GMT -6)
I have ankylosing spondylitis and proctitis and it seems to be getting worse despite the crazy amount of meds im on. Im on Simponi, 3 Lialda a day, one mesalimine suppository, and 100 mg of imuran. I've tried humira, cimzia, and remicade. The biologics that work, cimzia and remicade work ok and then after a year or two just lose their effectiveness. I'm only able to stand or sit in a chair for about 30 min at a time so my quality of life isn't that great at the moment ha! My Dr wants to increase the imuran to max dose for my weight to 150 mg a day. It just seems like the more meds we throw at it the more i need just to maintain which kinda scares me. I asked my DR about LDN and of course if its not in their medical book they don't have a clue so...I also heard LDN may not be good with imuran. Just wondering if anyone else is in the same boat and has any advice? Thanks everybody!
Kennie 42 Texas