welcome to HW! so wow....you've quite the genetics eh?
RA is terrible, i can do without.
besides prednisone & MTX what else have you been on to slow down the RA?
when do i say it's ER time? well, like an ER physician said to me: Although RA is a chronic disease...it still needs emergency attention at times. so, when you have uncontrollable joint pain, your pain meds are not helping it, or when there is acute pain anf swelling and about to cry...you GO. @ ER you will recieve fluids, some morhine or Toradol, and solumedrol. all which can help break a flare.
i would defintely question about Enbrel or Humira. they go well with MTX.
yes...the pain meds you are on are short acting. i take a slow release morphine wich is great! plus dilaudid for breakthrough pain. there is no "high" or drowzy feeling like with Avinza (for me that is so far) like regular narcotics...so you can function on it. it beats taking opioids every 3 hours.
i would aslo inquire about ankylosing spondylitis which involves the lower back & kinda sounds like what you explain. it's common with RA. there are tests and MRIs are a good idea too.
the bloodwork you go for could just be to track your RF, sed rate, and ANA, and CRP and CMP. these are pretty routine for RA pt's and the CMP is good to have if you are on MTX & pred because it looks at your liver function and metabolites. yeah, always ask for a copy of your labs...YOU OWN THEM! IT IS YOUR RIGHT AS A PATIENT TO ACCESS THEM & HAVE THEM IN YOUR POSSESSION.
i went througha similar situation w/ work too. in school more. (nursing) when in nursing school i would get "what are you doing having any business doing a career in this field? it's laborous? why not get a desk job? you're too ill to nurse"...blah blah blah. but i was actually GREAT at it, that is...when i could stand and walk! but i WILL return i know it. in a bad health state right now...but hopeful for the future. i get what you say about not talking about it when in work. thank God for healingwell! it's where i let it all out!
how long have you had RA?
please write back when you're up to it.
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.
Post Edited (erin kachmar) : 3/19/2006 12:55:16 AM (GMT-7)