ok, i'm cool.
turns out that this ALK PHOS is either bone or liver related. (he didn't even know postively!) hah! but he says that a low level is less dangerous than a high level. so this is just what i thought...medication related, most likely the DMARDs.
the CO2 he had no idea , but it will be repeated again. well gang...goes to show that even docs don't know everything all the time.
but that's ok....i wasn't worried. i just was more curious than anything.
soooooo, I AM UP TO 100 POUNDS!!!!!!
he was very happy about that....even though it is pred weight . he just hated to see an emaciated young lassie. so even if it's unhealthy water weight, at least it's something. my honey is ecstatic. he's been waiting a year for me to hit 3 digits.
i wish i felt better though! but no. some leg edema wich is painful. knees aren't happy. they're throbbin' away. as are elbows. andcan't sleep. rheummy thinks MTX is a good idea. but i would need birth control pills a month before starting this. have to talk with my honey this weekend about what we want. geesh...what do i say "hey it's now or never babe?" my boyfriend is older than i...so time is a little issue regarding childbearing.
in the meanwhile i'll continue the Imuran & increase, Humira still & he wrote a RX for more pred. yuck!
but he's really starting to show concern & wants me to get a remission. he knows i am still not able to work & i told him i want to be at least 30 percent better come september and WILL DO ANYTHING!
so i'll give it till June....and then add the MTX. or sooner if i wish, i just have to tell him when.
getting my knees injected next week.
oh what a struggle. hang in there everybody. this seems like this never ends!
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.
Post Edited (erin kachmar) : 4/8/2006 10:46:02 AM (GMT-6)