geesh, where do i start? began over a decade ago. long story short:
contracted Lymes disease around age 13:
(fevers, joint pain, seizures all throughout school...was ignored by docs & myself because....heck, i could still play, do sports, have fun. so who cared?)
age 16: joint pain & fatigue got worse; weird blood work showed up. showed positive for RA: again, docs & myself ignored it because I COULD STILL WORK, go to school, work out, etc...
seizures got worse, joint pain got worse, the GUT got worse in college.
tested for EVERYTHING UNDER THE SUN.
at age 19 had EXTENSIVE workups for Lymes. turned into neuroLymes (thus the fevers, seizures, paralyses problems). the CDC had my blood! hah! they did a lot of high tech crap to blood & biopsies....dated the bacteria to be at least 8 years old!!! it mutated several times!!! = antibiotic resistant.
3 more years of doctor care, the sequala of the Lymes triggered an autoimmune disease. thus, the RA.
RA was far gone, progressed FAST!!! so it hit my heart, lungs, and every major joint.
the Chiari Malformation: could have been born with it or it could have developed from the Lymes...no one knows. ( nor do i care at that...i have bigger issues. the seizures...at least they pass)
Lymes GONE!! in 2004!!!! hooray, but left with terrible AI disease. :(
RA way out of control. and still is.
in 2005 suddenly lost 30 pounds in a month, blood, "D" etc....viola, colonoscopy is Crohns.
all the doctor's do believe that it was a chain reaction.
i mean, a person having a very bad bacterial disease for a decade? without treatment....that's trouble.
so a lot of damage was done from the Lymes and the RA both gone untreated for a very long time.
it's an interesting case.
when i was 16, if my PCP had said,"hey...lets look into this RA" i feel things wouldn't have got THIS bad. but...the past is the past. i was a kid, what did i know?
so whatever hasn't killed me yet has made me MORE determined! (can't say has made me stronger, LOL.)
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.