I think sometimes those closest to us, even living with us, don't really understand how effected we are and it's a frustration and even a hurt when they don't take our words on faith and be at least sympathetic.
I also find that my health problems have been so chronic that people people get tired of hearing about
all the aches and pains. But that's the problem when living with someone with chronic pain and health issues. They really do sort of take over a life and headspace. Most of the pain that's is "invisible" to others eyes except in our talking or complaining about
them. I KNOW that even a tiny bit of swelling can cause me a lotta pain. The physical stuff dominates the attention ... and the life so often hey?
By the way, how do you feel after a hot bath and soak in it? Has it relieved some of the hurts and movements at least for a while?
I tried the hot pad (the rice sock) on my right elbow today and it hasn't helped that at all for me. Just waiting for some pills to kick in ;)
If you can't find the support at home, this forum and others like it are great for that. We can talk symptoms and all about
what ails us and worries us in here in understanding territory. Nice to have it at home tooo but when its not there, or not enough because they live with us day in and out and may not be able to be very supportive all the time, we need to find that somewhere else ... like ehre, or whereever else we do.
I really do find it frustrating to have to deal with people who don't understand or know ... especially my loved ones, sometimes. I try not to talk much about
my aches and pains to my daughter and try to focus talk on other things we're both comfy with. She's pretty cool (23) (oldest is 30) ...
I also think that with all this chronic stuff that fear causes a lot of anxiety towards symptoms, especially new ones and I know I talk (complain/whine) more about
them then ... like fear of the future and what that might be like. In that case i try hard not to think about
progression and try to live in the present as much as possible, but the fear fuels anxiety and bottom line its that anxiety that fuels the intensity of anxiety about
my aches and pains. In my case, I just need to talk out loud to someone about
some of these fears to try and come to terms with them, sometimes. Just to air the anxieties and decide how I can cope if and when.
Meanwhile ... some pain relief please! ;)
Post Edited (Kanadiana) : 5/12/2006 12:04:34 AM (GMT-6)