I know this is an old conversation, but I stumbled across it and thought my story might be able to help someone else. It is comforting to know that I am not the only one going through this.
A little more than a year ago I had a really bad case of strep. A few weeks later I got a huge lump on my hand. It was the weekend so I went to Urgent Care. They thought it was a spider bite since I had been moving (even though there were no holes). Gave me a steroid shot and sent me on my way. A few days later I had those nodules all over my legs and could barely walk or stand up. Went to my regular doctor. They weren't exactly sure what it was so they put me on prednisone. After a while, they went away.
A few months later I got strep again. Three rounds of antibiotics to get rid of it. I missed a week of work.... A few weeks later, the nodules on my legs came back again. My body hurt so bad that I couldn't stand up all the way. They started prednisone again and I felt a lot better. This time they identified it as Erythema Nodosum. I tried to step down off the prednisone several times with no luck. They referred me to a Rhuematologist.
She did lots of tests and ultimately diagnosed me with inflammatory arthritis. I tried Imuran, but was allergic. I have finally stepped off of the prednisone by switching to Humira and Mobic, but I still have flares.
I am 37 and did not have any medical issues prior to this. It all started from a strep infection. It has been a miserable (and really expensive) year, but I'm glad we are to the part where we are adjusting meds instead of figuring out what I have.
Just as a background, they are testing:
Vectra DA - was 66 in March
Sed Rate - was 32 in March
ASO - which was very high in March
Post Edited (recentRA) : 6/23/2015 2:40:03 PM (GMT-6)