You know...I "feel" so much more at ease now. Every time I see him & get a sense of "everything is going to work out eventually".
Deejane: I see that now you take Remicade. Why aren't you on Imuran? I thought Imuran was supposed to be continued while on Remicade? Can you tell me a bit more about how your sessions go? Like can you do it on weekends? How do you feel right after the infusion?
The GI doc brought that up again as well...with me still having to take the Imuran @ therapeutic levels while on Remicade.
Thanks "El"! Yeah, the one thing I learned in nursing school that I apply to my life as well...is to set attainable, realistic goals! LOL
It's a very nice feeling to completely TRUST someone? And I don't trust easily (easy to figure out why!)...so to be in the conditon I'm in now & trust someone like this is really important and I'm glad it happened. Was feeling way too vulnerable w/ just the rheumatologist not really helping me. And even the GI agreed with me...when dealing with a younger person it's really unfamiliar territory when it comes to AI and Rheumatic diseases for most rheummies.
So here am today, August 10th 2006...with a ton of confidence!
Oh, got the DHL truck with no problemo! The lady on the phone was super helpful, it was easy to set up pick-up. So it goes out Monday the 14th around 12noon after I get the blood drawn.
Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.